posted April 11, 2024 05:58 PM
Le_Kuei👍😎❤️Thank you.
Sadly I only have 4 face book friends two are impoverished family and another is to my knowledge also impoverished.
Am not going to join Twitter or anything else.
Am at this time unable to do that.
For online Lindaland nis the only place I intend to keep being involved with.
Facebook barely.
And sites like FB are very hard to see.🕶️
Physically and stamina are shot and do not the and most sadly I do not this will work for us after all👽😭
Our friends have all died.😭😭😭
Many even younger😭
We have no social life in person as we are both severely immunocompromised and cannot be around people safely and both need walkers and braces and even wheelchair transport chairs at this time.
So we stay at home pretty much except for medical reasons.
So in addition to self quarantine we are physically unable to go anywhere and must save our severely limited energy for all medical things.
We have most of our food delivered.
It is a service need we must use.
We are usually unable to actually go into any stores betwixt seizures from the lighting
and being unable to walk to shop and even to use a motorized unit.
More difficult to impossible than most can understand.
Too much to explain.
Ugh.
I was afraid that the go fund me thing might be impossible for us.
I will look into it but seriously we have no in person social life including relatives because of COVID and too many people are anti-vaccers and the faith based organization workers often do not vaccinate🤬🤬🤬 or wear masks👽🤬
Too many we know of aquantences and even family have been hospitalized and too many have even died due to COVID👽😭
So no way do we do visits in or out of our home.
Too dangerous.👽😭
Then the problem of workers to help, how do we get them to wear masks and to prove they are not contagious and have had all 5 COVID shots and flu shots and more⁉️
Would love ❤️👍😎to get a big RV 😎👍 or mobile or portable tiny home ETCETERA, to live in in our driveway until the house if fixed.
Yeah even a big yurt would work temporarily as weather is arms up.👍😎
That would help us to not get infected with anything from multiple workers when or if we find any.
A common old can kill the immunocompromised about like the bubble boy.
We are both severely immune compromised and cannot help that the treatments of DMARDS and targeted cancer ETCETERA therapy and needed various steroidal meds means we are both severely immunocompromised and that is a sad fact that we cannot remedy.😭👽
Hope that eventually I can stop the DMARDS/target cancer infusions and the several other nasty meds,
It sucks when such as we are so must subject ourselves es to so many dangerous but required treatments
Scary desperate times.👽😭
Thank you again and will look into the
go fund me
thing but it looks like it will not help us and we are it appears most likely to not be able to do the whole outreach they need from us.😭👽😭 Not copping out just being realistic.
Hopefully some people will come forward and help who will respect our need for them to not infect us.
With money we could do this and pay to have it all done.😎👍 Money money money sigh it sucks to be deeply impoverished.😭😭😭
If we could just sell and move that is an option we have considered but the city ETCETERA will not allow us to sell or give it away until it is up to an impossible code level we have no way to honor.😭👽🤬
Yet their threats of do it all or else is terrifying👽👽👽
Going to write for some more grants.
So far no one is responding even though we are definitely eligible.
That is the city and government in a nutshell🤬
Threaten people then tell them tough luck pretty much and they are not very understanding.
Hence people living in tents and caves in the nature preserve betwixt north and south side of the city.👽👽👽
Hoping to get some help this weekend but not sure if it is going to work out or not.
How does a household plan and schedule when we are bed down in misery at any given moment without warning⁉️😭👽
On that note going to try and eat again.
So freaking nauseated and weak.
Yes with help to work on things we can get on track enough for the government and city to get off our case.
More ney and help is all we need to make our lives better.👍😎❤️
There are grants and loans we keep applying for.💲💲💲
We keep track of everything we are looking into and who bothers to reply and give us the three quotes on work needed done.
Yeah three quotes but are replying or answering their phones yet👽🤬
So we keep track of all our efforts and keep turning that information over to the city ETCETERA hoping to buy us time until at least November not freaking July 🤬👽
Yeah I am totally freaking out stressed out babbling again, sorry .
This is so damn embarrassing and humiliating today the last adt👽😭
And yes
We will look into the go fund me site ETCETERA but doubt it will halp us.
Thank you for giving the link.👍
Also sounds crazy but even going to see if the television show
THIS OLD HOUSE
would be willing to give us help and do the whole house ETCETERA if we agree to let them put it all on television.
Ugh hate that being exposed to social stress and potential infections but must look into all possibilities no matter how crazy they seem.
Once house is fixed we can then get treadmill and other rehabilitation things and handicapped items rails etc installed.👍❤️
Assuming there are reliable programs for such things.
But I he waiting lists are long.
Like one old guy needed a new toilet but in over 18 months no agency will help him and so he uses a bucket to go in.
Yes long waiting lists and folks get evicted and homes condemned instead of getting the needed halp.
Or the city and government just wait and hope we all die off.🤬👽😭
Sigh the city wants ramps but due to my strange collapsed spine condition and flat semi club feet and all, I cannot do ramps. And my spouse cannot wheel me up and down on such.
They also demand standard rail height which will not work for me and standard stair steps risers all up to code which are okay with most physically disabled people but not me due to many rare restrictions.
Oh my gone a babbling again,👽
I am embarrassed and feel weird and whiney posting my woes here but
seriously Lindaland 👍😎❤️is pretty much my social life and has been since 2005 and since then all our friends have died another just a month ago.😭
Okay off again...
Thank you lei_Kuei very much😎👍❤️
Your input is appreciated👍
Pardon as usual any strange autocorrects and creepy typos .
I cannot type or see well.
Thank to toxic drops the CDC recalled really messed me up bad. And a jerk doctor who did not properly test or treat me😭🤬
Anyhow take care and bless you Lei kuei 👍😎❤️