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Author Topic:   every month in agony with female issues...
Gooberzlostlovefound
Knowflake

Posts: 727
From: and the embers never fade in your city by the lake
Registered: Jan 2002

posted April 19, 2006 05:11 PM     Click Here to See the Profile for Gooberzlostlovefound     Edit/Delete Message
Hi everyone..

I am really desperate for your advice/guidance/wisdom.

Every month I go through absolute agony with my period.

I have completely debilitating cramps. They start almost two weeks before my period, and are so painful I cannot even wear clothing. I stay in bed for days at a time, only getting up to use the bathroom or eat/drink.

I have been to so many health practitioners -- acupuncturists, herbalists, gynecologists, nutritionists, massage therapists, hormone specialists, aryvedic practitioners, homeopathic doctors, reiki healers, pain specialists, etc.

I've taken so many supplements...calcium, magnesium, borage oil, evening primrose oil, etc.

I'm at my wits end. I have almost no hope left that this will ever get better.

I take opiods every month to deal with the pain, but it's still not enough. I'm nineteen and in my first year of college, but I just dropped out because I can't keep up anymore.

My mother and grandmother also had the same problem, although not to the same degree that I do. Both of them said it got much better once they had children.

I don't know what to do, or who to see. I recently tried birth control (for the 2nd time) to help with the cramps, but I had a really bad reaction to it.

The thing is, gyneclogists I've seen said this is actually fairly normal. But I wonder, how can this be that normal?? I can't do anything for at least 1/4 of each month. I can't even work or be in school at this point.

I'm sorry to rant on like a crazy person. I don't want to seem self-pitying. I just have no idea what to do.

Any advice is appreciated. Thank you for reading...

sincerely,
GLLF

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Harpyr
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Posts: 2072
From: land of the midnight sun
Registered: Dec 2002

posted April 19, 2006 05:47 PM     Click Here to See the Profile for Harpyr     Edit/Delete Message
oh that sounds awful.

I had a friend who had the same problem. She couldn't hold down a job either because of it. She ended up being diagnosed with severe endometriosis and had a couple of laparoscopies to remove the endometrial blood that had collected in her abdominal cavity. She is alot better now. I don't know if this is the same thing you have though.
I wish I had some more helpful suggestions..
I mentioned in sunchild's string something that I had read recently about eliminating refined white sugar and refined grains from one's diet as being a way to eliminate severe PMS symptoms.. maybe that would help you too...
Blessings of healing to you.

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SunChild
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Posts: 3118
From: Australia
Registered: Jan 2004

posted April 19, 2006 07:20 PM     Click Here to See the Profile for SunChild     Edit/Delete Message
Oh boy we are in this together.

It really hurts I know. As you know, my pms is just part of it, pains come as well.
I've been seeing a great reflexologist, this is the first month when I didn't collapse in pain. I could just bare it without medication.
I lay down, with a hot water bottle, closed my eyes and bathed myself in white light for about 2-3 hours.
It really helped.

Sometimes it's Mind over matter...I wish I could say it was so easy, I'm just trying it at the moment, but that's the first step I guess, you must try and practise for it to work, like magic. I can't say I've mastered it, but am just trying.
I'm staying hopeful there is a natural potion or something for it too.

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Nephthys
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Posts: 2460
From: California
Registered: Oct 2001

posted April 19, 2006 08:04 PM     Click Here to See the Profile for Nephthys     Edit/Delete Message
I really feel for you. I have problems with both Ovulation, as well as Menstruation. I won't bother you with my problems, let's focus on yours.

What is your diet like? You absolutely MUST get off of sugars and white carbohydrates. You need to eat healthy carbs, like whole grains, brown & wild rice, and quinoa and oats. You should not eat junk foods, especially those that have preservatives, MSG, or fried foods.
Eat a lot of healthy, fresh foods, such as veggies and lean protein sources.

You are what you eat - and when you get older, it will catch up with you! Trust me, I know!

I notice that calcium DOES help with cramps, but I do need to take a lot. So I take Whole Foods brand Calcium-Magnesium-Zinc, and I eat plain, unsweetened yoghurt. I use Stevia to sweeten it. I do notice that the more calcium does help with the cramps. Also take iron and eat iron rich foods such as spinach and asparagus. That helps too.

Go back to another Gyn. and get another opinion, also tell them you NEED to be tested for endometriosis. Tell them that you had to drop out of college, etc.

Keep us posted! Good luck! I am one of the few ones who can relate!

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Gooberzlostlovefound
Knowflake

Posts: 727
From: and the embers never fade in your city by the lake
Registered: Jan 2002

posted April 19, 2006 09:53 PM     Click Here to See the Profile for Gooberzlostlovefound     Edit/Delete Message
Thanks for the replies.

I am pretty damn health-conscious when it comes to my diet. Of course, I'm not perfect, I have my "off" days. But for the most part I eat 100% organic vegan. Lots of fruits and veggies....With grains, everything is spelt this, quinoa that. Instead of sugar, agave nectar. etc. etc. I work REALLY hard with my diet.

I do let myself have a little cheese and a little fish now and then. But I avoid sugar, anything fried, anything overly processed, overly refined, etc. etc.

I'm not so sure diet is really the problem in my case. I don't think I could get much more restrictive without going insane, lol.

Will be back to comment more.

Thanks again..
GLLF

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Nebel
Knowflake

Posts: 237
From: Australia
Registered: Aug 2002

posted April 20, 2006 02:30 AM     Click Here to See the Profile for Nebel     Edit/Delete Message
Heya Gooberz
I can really empathise with you, so I'd like to recommend some approaches that worked for me.

Firstly. You MUST get a second opinion. Nephthys is right to suggest you may be suffering from endo. I would recomment a Traditional Chinese Medical Doctor, Naturopath or Homeopath - only becasue I feel a true cure only comes from natural medicine. Whatever method you choose, it would be wise to stick with it for a long period. Give it a chance to work. Acupuncture works/ed wonders for me - I love it! But you need to find out for yourself what works best.

Secondly. I am concerned about your diet. If you feel your diet is what suits YOU best, then I am happy. But i am concerned that you are conforming to what everyone else says is the 'perfect' diet. 'Perfect' for who?! I was once a very strict raw-foodist (Isn't this supposed to be the perfect diet?!), which left me with a whole host of health problems, such as chronic fatigue syndrome, liver&pancreatic digestive capacity degeneration etc. All the while all i wanted was a hot meal - and meat!! Its amazing what your body will tell you, given the chance. Listen to your body. I'm not going to tell you what you should be eating - only YOU know that! But listen to your body. Fish is a great food! It is something that I recommend people try. Protein is something that I find I need 2X more of than is recommended by dietitians. Do you crave certain foods? This is a good way to find what your body may be lacking. For example, I often crave sunflower seeds, which i then know i need Magnesium (a lack of can increase the severity of cramps).

I don't know what Sun Sign you are, but you sound like you need to relax Stress & tension make my periods 1million times worse. I found the stress of University was something i could not handle. I am now studying via Distance Education&trying really hard to RELAX .

The fact that you've been told that what you experience is 'normal' makes me want to cry! Birth control pills, in my opinion, are almost the worse thing you can put in your body (look it up on the net). If you want to try regulating your cycle, try Agnes Vitex-Castus or Chaste Tree.

But please, don't rely on what I or anyone else says becasue you need to see a professional. It may take a while to find the right person to help you, but the wait is worth it when you start experiencing relief

Take Care & I hope you find what you need to help you

OXOOX
Nebel

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Gooberzlostlovefound
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Posts: 727
From: and the embers never fade in your city by the lake
Registered: Jan 2002

posted April 20, 2006 11:00 AM     Click Here to See the Profile for Gooberzlostlovefound     Edit/Delete Message
hey Nebel...

You make a good point about listening to your body when it comes to your diet. You seem like a sweet person...very sincere and kind response. Sometimes I am so confused about what I should be eating. Even a lot of the 'experts' can almost completely disagree. Some say absolutely no grains, lots of animal protein...others say completely opposite (e.g. vegan) is better. Some say raw food is the way to go. I've toyed around with it a lot, and I still am....always trying to figure out what works best for my body.

It seems like whatever I choose to eat, there is always someone there to say, "no, you shouldn't be eating this, you should actually be eating that."

At the end of the day, I guess you just have to try and trust yourself. I think the body is pretty intelligent and has a decent idea of what it needs, if you listen closely. Then again, I'm not exactly a picture of perfect health, so I may not be the best example, lol.

I did see an acupuncturist 2-3x a week for almost two years. I stopped going because the benefit I received was so subtle, and over time seemed to fade entirely. I also tried chaste for a couple months, which did not do anything for me except upset my stomach. The only supplement I've found to be slightly helpful is borage oil, in large quantities.

About relaxing...yeah, I think you are right. I am kind of a perfectionist (in case you could't tell from my psycho restrictive diet, lol). The stress of school I think was too much for me.

I am a Capricorn sun, btw. And Virgo moon. I Sometimes go overboard when it comes to discipline. I truly feel that it's not possible for me to be too disciplined...in anything. The more, the better. Discipline is the key to all success, it makes the world go round...blah blah blah. Every day I deal with physical pain or any health problem, I constantly tell myself, "suck it up."

But you know what...I don't really agree with 'mind over matter'. I think that attitude has been a bad thing for me. I'm so sick of pushing myself in school and putting my health second. Has been going on for years, and I really feel that enough is enough. Whe3n you are taking opiods and you;'re still in almost more pain than you can handle, it's NOT a mind over matter situation. I am not talking about a cold here. IMO, the body's problems should not be brushed off as a bad attitude or this or that. Sometimes I find myself in New Age-y circles and it can get a little frustrating. At a certian point it's like, "hey -- doesn't ANYONE believe in science at all? Even a little?"

Anyhow, I'll stop ranting and raving. I probably sound like a lunatic.

I will reply to the other posts later...thanks again you all for reading (and caring)

Wish everyone the best...........

GLLF

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Gooberzlostlovefound
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Posts: 727
From: and the embers never fade in your city by the lake
Registered: Jan 2002

posted April 20, 2006 11:09 AM     Click Here to See the Profile for Gooberzlostlovefound     Edit/Delete Message
Nephthys~

it's good to 'run into you' again in LL! I don't see you around much..maybe we're just at different forums. You're one of the few LL 'veterans'left...glad to see you're still here.

I think you are aboslutely right about seeing another gynecologist. While I am SO frustrated with conventional doctors, I think I need to give it one more go. The last one I saw was a month ago..she put me on the nuva ring. Turned out to be a disaster.

She mentioned that I probably do have endo. But she said that the treatment would be the same either way....birth control pills. But I can't seem to tolerate them at all. I throw up, get rashes, have mood swings. My body has always been sensitive to different meds.

I will look for a new gynecologist...this one was not a keeper. When I told her about my reaction to the nuva ring, she brushed me off and said she'd never heard of such a reaction before. But I did some research online, and I found TONS of women who could no tolerate it. So....onward and upward, time for a new doctor.

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salome
Knowflake

Posts: 534
From:
Registered: Nov 2005

posted April 20, 2006 11:44 AM     Click Here to See the Profile for salome     Edit/Delete Message
i'd like to suggest something that we don't often consider...it entails a shift in perspective that has changed around this whole idea of hormonal issues and imbalance and suffering for me.

if you let these thoughts seep into subconscious slowly, but consistently, i believe you will experience a change in your sytstem, both physical and metaphysical.

female reproductive issues and menses carries with it enormous social and cultural baggage. if we can begin to view it for what it is....the very epitome of female strength and power, in every sense, mental, physical and spiritual, we will feel a shift in our minds and bodies regarding this monthly phenonmena.

it is so ingrained in our thinking that this is something to fear and dread...that, at best, it's a nuisance, messy and time consuming...and gradually worsens into something debilitating and damaging to our lives, that swe don't realize how entrenched in our bodies and minds are these thought patterns.

in reality, this is the most beautiful magical time we have. i have begun looking forward to my moon time every month. it reminds me that i am a daughter of earth...that i am she, and that i have power and magic and movement in me. it is during my menses that i feel this most. it is a time for honoring your body, acknowledging that which is hidden within you, and celebrating your special female power.

as i have begun thinking in these ways, i have noted a gentle shift in my body at moon time...the pain isn't as intense and i have a profound sense of well being. i try to be easier on myself at this time, and rest, but i no longer expect to spend the day in bed...if i must attend to things outside my home, i can, without much discomfort. this was unthinkable before. and not only accepting, but embracing fully, the heightened senses and emotions that it brings, has transformed my fear of emotions and strong feelings, into quiet respect and awe for the power this monthly time brings. you can be in control of your body and senses....by letting go of fear and loathing of your body's functions, and honoring and loving the power that your female system affords you.

the power of love is so healing; it can heal the pain and imbalance you feel...loving yourself, allowing yourself to receive love from others and the universe.

this however, is much easier said than done. i'd recommend the following books to start on the path of transforming your thoughts about the meaning of your moon time...and essentially your life ~

Honoring Menstruation - A Time of Self Renewal
Lara Owen

Sister Moon Lodge - The Power and Mystery of Menstruation
Kisma K. Stepanich

a good part of history consists of the effort to squelch and diminish this power inherent in female mysteries. it's time to reclaim them with love and healing.

love and blessings,
salome

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Gooberzlostlovefound
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Posts: 727
From: and the embers never fade in your city by the lake
Registered: Jan 2002

posted April 20, 2006 01:38 PM     Click Here to See the Profile for Gooberzlostlovefound     Edit/Delete Message
Hi Salome...

Thank you for your thoughtful response. What you say sounds beautiful in theory, but it is a bit hard for me to accept. I will put some serious thought into it, though. I try not to 'loathe' or 'dread' my period, but it's a little bit difficult. Ever since I was twelve, everymonth,I am literally on the floor moaning, sometimes throwing up stomach acid. I occasionally go to the emergency room to get injections of toredol, but usually I can't even bear the thought of putting on clothes or walking, so I don't go. I just got a precription for oxycontin, which is stronger than what I currently take,(ultracet) although I am VERY wary of using it. I've pretty much decided that I won't.

Sometimes it almost seems like whatever is going on with my body is truly abnormal, makes me wonder if I don't have a serious condition I'm unaware of? Because of my age, most doctors haven't tested me for anything serious. But I"m starting to think they should. It's shocking to me how so many gynecologists kind of shrug me off...maybe they think I'm exaggerating, I'm not sure. I would really like to find someone who will take me seriously and realize that I really need help. Every person I have been to says, "all we can really do is put you on the pill, and give you painkillers."

I *am* interested in the books you mentioned. Of all of them, is there a specific one you recommend?

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Nephthys
Moderator

Posts: 2460
From: California
Registered: Oct 2001

posted April 20, 2006 07:36 PM     Click Here to See the Profile for Nephthys     Edit/Delete Message
GLLF ~ I have Kaiser Medical coverage and they are very "western" medecine and they don't help me either. BUT, they did tell me that if I had endometriosis, there is an operation that you can have that would change the lining of the uterus which would alleviate all of the symptoms! I can't believe they told you birth control pills was the *only* cure.
I wouldn't recommend the pill. I was on it for 20 years and now I have systemic candidiasis. (antibiotics in my youth also contributed to it).

Wow, sounds like your diet is so healthy and great!

I am currently ovulating, and so TIRED and MUSCLE ACHEY, and SORE OVARIES blehhhhh

No, I don't get around much here at LL, and yes I only go to certain forums. Once in awhile you'll see me post around and then I may only show up at Gaia's or HC.

Good luck, I hope everyone's answers will help.

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Nephthys
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Posts: 2460
From: California
Registered: Oct 2001

posted April 20, 2006 07:38 PM     Click Here to See the Profile for Nephthys     Edit/Delete Message
Another note: I told my Gyn. at Kaiser that my breasts get sharp shooting nerve pains when I ovulate, and she said, "I never heard of that before". AUGGGHHH!

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salome
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Posts: 534
From:
Registered: Nov 2005

posted April 20, 2006 10:22 PM     Click Here to See the Profile for salome     Edit/Delete Message
dear Gooberz ~

just reading the books when you have a quiet moment will begin the process of change....

i edited the titles...i guess it appeared that each line was a different book...but i've listed one book per author.

i'll have a look through these books and and post some relevant content...maybe that will help....or check them out at amazon.com....where you might find them at a lower cost in the marketplace.

essential oils provide a tremendous healing effect as well....clary sage, geranium, and rose provide healing at lots of different levels. mix a few drops of the essential oil with an oil such as olive or almond oil...jojoba is very healing, but kind of expensive. massage into your abdomen with love, and feel healing light flowing through your hands as you do so. repeating some affirmations as you do this would also have a tremendous effect. they work!

soaking in a tub with these essential oils, a few cups of sea salt and baking soda, will both soothe you and draw toxins and impurities from your body. this will help re-balance your system as well.

here are some affirmations from Louise Hay's book You Can Heal Your Life for healing menstrual issues ~

i accept my full power as a woman and accept all my bodily processes as normal and natural. i love and approve of myself.

i am balanced in all changes of cycles. i bless my body with love. all parts of my body are beautiful.

say these every day...all throughout the day.

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sue g
Knowflake

Posts: 5086
From: ireland
Registered: Sep 2004

posted April 21, 2006 02:44 PM     Click Here to See the Profile for sue g     Edit/Delete Message
Hi girl

I too suffered all my live with very bad periods....but this month I noticed a difference....no cramps and not so heavy.

The only difference in my life is that I joined a gym and go three or four times and week and dance and walk too...

I also take magnesium and vit b complex...

Hope this helps....

Sending love

Sue g

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Iqhunk
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Posts: 1447
From: Chennai
Registered: Oct 2005

posted April 22, 2006 02:42 AM     Click Here to See the Profile for Iqhunk     Edit/Delete Message
If you girls dont mind a guy speaking on this, I have something to comment.

Salome's technique will work by psychologically encouraging your Pineal Gland to issue instructions to alter the chemcial releases and make the periods tolerable. It may take 14-21 weeks, pls dont give up on it. Similar methods worked for me on relieving chronic knee pain for me that lasted for 11 years and was incurabke with any allopathic method.

Sue's method is compulsory for all girls. Daily or alternate day Aerobic Exercises force the oxygen and minerals and enzymes via small capillaries to all vital cells. The smallest vital cells generate the most important chemicals and their imbalance causes wrong quantities of hormones to be released, hence the PMS.

Magnesium is an enzyme buffer, a very important supplement for all humans. Along with B Complex, higher doses of Vitamin C and regular supplement of Vitamin E should be taken.

Acid Detox is another thing. White Sugar, Processed cereals, Pepsi/Coke, Burgers and Pizza are all packaged slow-poisons. For general health improvement, taking alkaline food like Figs, Lemons, Oranges, carrots, beets, Wheatgrass Juice and so on is a must.

And a lot of water to boost detox and increase blood circulation.

Color Therapy: Mentally surround your Aura with Bright medium green and visualize this bright green color incoming through the crown chalra from your Higher Self and flowing through every cell in the body, then going out from the crown chakra again. Repeat this 10-15 times every night with deep breathing exercises. It will take only 15 minutes a night. This visualization helps oxygenate and heal every cell too.

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sue g
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From: ireland
Registered: Sep 2004

posted April 22, 2006 07:19 AM     Click Here to See the Profile for sue g     Edit/Delete Message
IQ

You are amazing man........a fine example to all men out there.

Bless you....

Love

Sue xxx

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Nebel
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Posts: 237
From: Australia
Registered: Aug 2002

posted April 25, 2006 10:29 PM     Click Here to See the Profile for Nebel     Edit/Delete Message
GLL :) How are you today?

I was thinking about you yesterday - I got my period & for the first time in about eight months I again experienced the absolute agony I had hoped I had gotton rid of. Only one day of it thank God - but this is for you: do you know what had changed?...

STRESS!!!

I took on a new job about 3 months ago - only for the money mind you. I hated it. Every morning I woke up with a knot in my tummy - knowing I had to go to work (A group of women at work were ganging up on me, calling me names etc. Really I should have been stronger to ignore it all - but it started to get to me).

I still took my supplements. I still exercised. I still had my acupuncture.

Makes it pretty plain to me :)

Cappy Sun & Virgo Moon :) I'm in a similar boat - Taurus Sun/Moon/Asc + Mer/Ven/Chi/Mar in Taurus as well. You talk about disipline!! LOL. I find for me its more a problem of letting go: of pain, of negative thoughts & emotions & past experiences.

Diet. I am finding more & more that diet, really, is only a small fraction of the puzzle. I know 'people' say: eat this, dont eat that etc. But I find that the best physician is that one you carry around with you :) I followed everyone elses idea of what i should eat for years. Vego then vegan followed by raw foods. You wanna know what? The whole time I got colder & sadder & more fatigued. The Chinese say that the best diet is one that is warm (Cooked). They've been doing what they 'feel' is best for 1000's of years...

I now find no point in punishing myself by becomming more & more strict with my diet (or whatever). I find that a warm diet (mostly lightly cooked stir-fries & soups), with low carbohydrates (limited grains& flours)& high protein (Yes I eat meat - small amounts, mostly fish & chicken) suits ME best.

I'd like to share something with you that helped me a LOT :)

(from PEACE, LOVE & HEALING The Path To Self-Healing by Bernie S. Siegel M.D. p.g. 149)

"...I know what those expectations are, and I too have been a victim of them. But I say we only fail if we are trying to keep people from being dead. Then we will inevitably fail, since life has a 100 percent mortality rate. I've done the research, and I hate to tell you, but everybody dies - lovers, joggers, vegetarians and non-smokers. I'm telling you this so that some of you who jog at 5.00am and eat vegetables will occasionally sleep late and have an ice cream cone"

I don't believe we have to die, if we choose not to, but this statement is for people like you & I who have such a hard time letting go. Such a hard time relaxing. You can relax & know that going with the flow can be a good thing every now and again :)

Lots of Love
Nebel

------------------
If you want to view paradise - simply look around and view it!

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ariestiger
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From: UK
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posted April 26, 2006 08:58 AM     Click Here to See the Profile for ariestiger     Edit/Delete Message
GLLF, please refer to my answer to SunChild's PMS post. There are lots of claimed remedies but I personally believe the root cause is down to diet. You are only nineteen, I believe if you can do something about it now you can get your life back!! It will take some time for your body to sort itself out but over time you should see the problems diminishing. I know what you are going through because I used to go through hell myself.

PS: Don't take this the wrong way, but I was brought up a vegetarian and REALLY used to suffer before I ate meat. I'd recommend eating a bit of meat/fish with some goat's/sheep's milk (no cow's milk though) and also a little fruit/sugar during the 2nd half of your cycle. The body needs it and it does actually help prevent cramps/depression.

AT

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amisha121877
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From: USA
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posted April 26, 2006 11:47 AM     Click Here to See the Profile for amisha121877     Edit/Delete Message
Hi! I'm sorry to hear of your painful situation.

When I first started getting my period - i was in middle school and had to leave out of class every couple of hours or so because i was soooooo sick - flu-like symptoms and the pain was unbearable. There were times when i would actually go to the bathroom and really throw up. It was horrible to go through this every month, crying myself to sleep with a pillow bunched up under my stomach to stub out the pain. Unfortunately, the more i stayed in bed or engrossed in the pain - the more i felt its pulsating presence. eventually, my doctor at the time, put me on birth control pills. the pain wasn't as bad and my period were finally lasting a week (before it was about 2 weeks) and on time too! whew - finally. I am no longer on birth control pills - i promised myself in the beginning, 3 years and i'm off. I try not to depend on drugs of the midol, advil, birth control, etc. type.

One of those sickly days - before i started taking the pill - i stayed out of school, throwing up, of course. I went to a family friend's and she happened to be an avid gardener. I spent the whole morning with her in her garden and drinking herbal tea - I think the combination of the tea, working in the garden, and MOST ESPECIALLY the Sun helped me A LOT - I felt soooooooooooo much better. (P.S. I find it fascinating that for pains of the muscles, how much exposure to the Sun helps and when I have a headache - how much taking 5-10 minutes out in a dark room, helps). but definitely, the more you stay in bed with that - the more pronounced the pain is. Also, my elders use to always warn me about sitting on grounds as well - that it's not good for my insides to sit on concrete and such especially around and during my period. This too intensifies the cramps. I believe it.

I wish you much luck with this - hopefully in your case, you will get to the point where you may still get cramps and a steady period but no where and no how as painful as right now. Right now, I still get the cramps and week long period but it is no way, no how as bad as those days in middle school, high school, college when I was adjusting to part of the process of puberty.

As for the diet comment - yes, I've been told that my diet is probably what makes my period last for so long. when I ate much healthier than I do now - for a moment - my periods were 3-4 days and no cramps, at all.

Sending you lots of light, love, and healing

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fayte.m
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Posts: 4131
From: ~out looking for Schrodinger's cat~
Registered: Mar 2005

posted April 26, 2006 01:25 PM     Click Here to See the Profile for fayte.m     Edit/Delete Message
Make sure to have the CA125 test done yearly.
And hormonal levels tested.

------------------
~I intend to continue learning forever~"Fayte"
~I am still learning~ Michangelo
The Door to Gnosis is never permanently locked...one only needs the correct keys and passwords.
The pious man with closed eyes can often hold more ego than a proud man with open eyes.
Out of the mouth of babes commeth wisdom that can rival that of sages.
In the rough, or cut and polished..a diamond is still a precious gem.
-NEXUS-

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Gooberzlostlovefound
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Posts: 727
From: and the embers never fade in your city by the lake
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posted April 26, 2006 06:54 PM     Click Here to See the Profile for Gooberzlostlovefound     Edit/Delete Message
Hi everyone, I'm sorry I haven't been better about getting back to all your responses.

Thank you all so much for taking the time to read my post and being kind enough to erspond with advice/encouragement. Means a lot to know I'm not completely alone in this.

Fayte~ What is the CA125 test?

Also...I did get hormone levels tested, and they are VERY much out of whack. The doctor who tested them said they were literally "off the charts" and said she had almost never seen anything like it. I worked with her for almost two years, but, unfortunately, my efforts with her to rebalance them haven't seemed to work. She admitted she didn't really know what to do. In any event, I do still have hope that I will figure it out eventually.

Once again, thank you all for your kindness.

:startheart:
GLLF

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fayte.m
Knowflake

Posts: 4131
From: ~out looking for Schrodinger's cat~
Registered: Mar 2005

posted April 26, 2006 10:32 PM     Click Here to See the Profile for fayte.m     Edit/Delete Message
GLLF
I have been through and continue to have female body troubles since I was 9 years old. So to date some 42 years of grief and dozens of doctors.
The CA125.


SIGNS OF OVARIAN CANCER - THIS IS A MUST READ


Subject: "SIGNS OF OVARIAN CANCER" (even in the absence of Ovaries) THIS IS A
MUST TO READ TO THE END. (Insist on CA-125 --find out why)

An Eye Opener on Ovarian Cancer

I hope you all take the time to read this and pass it on to all you can..
Send this to the women in your life that you care about.

Years ago, Gilda Radner died of ovarian cancer. Her symptoms were
inconclusive, and she was treated for everything under the sun until it was too late.
This blood test finally identified her illness but alas, too late. She wrote a
book to heighten awareness. Gene Wilder is her widower.

KATHY'S STORY: this is the story of Kathy West

As all of you know, I have Primary Peritoneal Cancer. This cancer has only
recently been identified as its OWN type of cancer, but it is essentially
Ovarian Cancer.

Both types of cancer are diagnosed in the same way, with the "tumor marker"
CA-125 BLOOD TEST, and they are treated in the same way - surgery to remove
the primary tumor and then chemotherapy with Taxol and Carboplatin.

Having gone through this ordeal, I want to save others from the same fate.
That is why I am sending this message to you and hope you will print it and
give it or send it via E-mail to everybody you know.

One thing I have learned is that each of us must take TOTAL responsibility
for our own health care. I thought I had done that because I always had an
annual physical and PAP smear, did a monthly Self-Breast Exam, went to the
dentist at least twice a year, etc. I even insisted on a sigmoidoscopy and a bone
density test last year. When I had a total hysterectomy in 1993, I thought
that I did not have to worry about getting any of the female reproductive
organ cancers.

LITTLE DID I KNOW. I don't have ovaries (and they were HEALTHY when they
were removed), but I have what is essentially ovarian cancer. Strange, isn't it?

These are just SOME of the things our Doctors never tell us: ONE out of
every 55 women will get OVARIAN or PRIMARY PERITONEAL CANCER.

The "CLASSIC" symptoms are an ABDOMEN that rather SUDDENLY ENLARGES and
CONSTIPATION and/or DIARRHEA.

I had these classic symptoms and went to the doctor. Because these symptoms
seemed to be "abdominal", I went to a gastroenterologist. He ran tests that
were designed to determine whether there was a bacteria infection; these tests
were negative, and I was diagnosed with "Irritable Bowel Syndrome". I guess
I would have accepted this diagnosis had it not been for my enlarged
abdomen. I swear to you, it looked like I was 4-5 months pregnant! I therefore
insisted on more tests

They took an X-ray of my abdomen; it was negative. I was again assured that
I had Irritable Bowel Syndrome and was encouraged to go on my scheduled
month-long trip to Europe. I couldn't wear any of my slacks or shorts because I
couldn't get them buttoned, and I KNEW something was radically wrong. I
INSISTED on more tests, and they reluctantly) scheduled me for a CT-Scan (just to
shut me up, I think). This is what I mean by "taking charge of our own health
care."

The CT-Scan showed a lot of fluid in my abdomen (NOT normal). Needless to
say, I had to cancel my trip and have FIVE POUNDS of fluid drawn off at the
hospital (not a pleasant experience I assure you), but NOTHING compared to what
was ahead of me.

Tests revealed cancer cells in the fluid. Finally, finally, finally, the
doctor ran a CA-125 blood test, and I was properly diagnosed.

I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER, AND YET THIS :
SIMPLE CA-125 BLOOD TEST HAD NEVER BEEN RUN ON ME, not as part of my annual physical exam and
not when I was symptomatic. This is an inexpensive and simple blood test!

PLEASE, PLEASE TELL ALL YOUR FEMALE FRIENDS AND RELATIVES TO INSIST ON A
CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL PHYSICAL EXAMS.

Be forewarned that their doctors might try to talk them out of it, saying,
"IT ISN'T NECESSARY." Believe me, had I known then what I know now, we would
have caught my cancer much earlier (before it was a stage 3 cancer). Insist
on the CA-125 BLOOD TEST; DO NOT take "NO" for an answer!

The normal range for a CA-125 BLOOD TEST is between zero and 35. MINE WAS
754. (That's right, 754!). If the number is slightly above 35, you can have
another done in three or six months and keep a close eye on it, just as women
do when they have fibroid tumors or when men have a slightly elevated PSA test
(Prostatic Specific Antigens) that helps diagnose prostate cancer.

Having the CA-125 test done annually can alert you early, and that's the
goal in diagnosing any type of cancer - catching it early.

Do you know 55 women? If so, at least one of them will have this VERY
AGGRESSIVE cancer. Please, go to your doctor and insist on a CA-125 test and have
one EVERY YEAR for the rest of your life.

And forward this message to every woman you know, and tell all of your
female family members and friends. Though the median age for this cancer is 56,
(and, guess what, I'm exactly 56), women as young as 22 have it. Age is no
factor.

A NOTE FROM THE RN:

Well, after reading this, I made some calls. I found that the CA-125 test is
an ovarian screening test equivalent to a man's PSA test prostate screen
(which my husband's doctor automatically gives him in his physical each year and
insurance pays for it). I called the general practitioner's office about
having the test done. The nurse had never heard of it. She told me that she
doubted that insurance would pay for it. So I called Prudential Insurance Co,
and got the same response. Never heard of it - it won't be covered.

I explained that it was the same as the PSA test they had paid for my
husband for years. After conferring with whomever they confer with, she told me
that the CA-125 would be covered.

It is $75 in a GP's office and $125 at the GYN's. This is a screening test
that should be required just like a PAP smear (a PAP smear cannot detect
problems with your ovaries). And you must insist that your insurance company pay
for it.

Gene Wilder and Pierce Brosnan (his wife had it, too) are lobbying for
women's health issues, saying that this test should be required in our physicals,
just like the PAP and the mammogram. PLEASE TAKE A MOMENT TO SEND THIS OUT
TO ALL THOSE YOU CAN. BE IT MALE OR FEMALE, IT SHOULD NOT MATTER, AS THEY CAN
FORWARD IT ALSO TO THOSE LOVED ONES THEY KNOW.

------------------
~I intend to continue learning forever~"Fayte"
~I am still learning~ Michangelo
The Door to Gnosis is never permanently locked...one only needs the correct keys and passwords.
The pious man with closed eyes can often hold more ego than a proud man with open eyes.
Out of the mouth of babes commeth wisdom that can rival that of sages.
In the rough, or cut and polished..a diamond is still a precious gem.
-NEXUS-

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SunChild
Moderator

Posts: 3118
From: Australia
Registered: Jan 2004

posted April 27, 2006 02:07 AM     Click Here to See the Profile for SunChild     Edit/Delete Message
Hey iq ~ Great advice! I took some of it too.

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Iqhunk
Knowflake

Posts: 1447
From: Chennai
Registered: Oct 2005

posted April 27, 2006 04:56 AM     Click Here to See the Profile for Iqhunk     Edit/Delete Message
Hi SunChild
Use the complete mthods pls, including the affirmations from Salome and the extra physical activities said by Sue and your own Reiki techniques along with green visualization.

I have a very strong feeling that from next month you and Gooberzs will be feeling normal.

Meanwhile, I have been alkalizing myself for a whole week now with Dates [the real Dates ], Figs and Raisins in huge quantities to normal diet. Also ate antioxidants like Vitaminc C and E together instead of separately.
Without additional exercise, my upper body strength is up 5% with no body weight increase.
This means acid waste buildups are getting neutralized and allowing the cells to improve their functioning. Hence the increase in muscle-nerve coordination manifesting as increased strength.

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ariestiger
Knowflake

Posts: 1087
From: UK
Registered: Jan 2004

posted April 27, 2006 05:46 AM     Click Here to See the Profile for ariestiger     Edit/Delete Message
Lqhunk, do you mean the *real* dates as in *yellow, crunchy, on the branch* (I like those too...about 4 or 5 at a time when they are decently ripe...and also real figs (as opposed to dried).

Mmmm...be careful about large amounts of dried fruit though...the concentrated sugars will actually ACIDIFY your system if you have too much.

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