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Author Topic:   Fibromyalgia
cancergurl
Knowflake

Posts: 25
From:
Registered: Jun 2005

posted June 08, 2006 03:04 PM     Click Here to See the Profile for cancergurl     Edit/Delete Message
Hello! Just wondering if any of you out there in Linda Land have been diagnosed with Fibromyalgia syndrome and, if so, what steps have you taken to better yourself i.e. medication, therapy, etc. Also, how has it affected your life? My doctor has recently diagnosed me with this and, after alot of research on the internet I just wanted to get a feel for what other people may be going through. Thanks.

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Kim Rogers
Knowflake

Posts: 176
From: Watertown MN USA
Registered: Apr 2006

posted June 08, 2006 06:10 PM     Click Here to See the Profile for Kim Rogers     Edit/Delete Message
Hi Cancergurl,

Yes, I too have that diagnosis ( along w/ a few others).

It's a tough one. I've found that it takes a whole lifestyle change to overcome it.

It is as much a psycic trama as it is physical, or should I say that the body/mind/spirit connection all need to be addressed.

Feel free to email me; its in my profile. I would love to talk more.

BTW Welcome to LL!

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fayte.m
Knowflake

Posts: 4473
From: ~out looking for Schrodinger's cat~
Registered: Mar 2005

posted June 08, 2006 10:40 PM     Click Here to See the Profile for fayte.m     Edit/Delete Message
Fibromyalgia,CFIDS,Osteoarthritis,paraspinal nerve damage, MFS,...etcetera.
Yeah..,no fun.

I work on or have my husband work on my trigger points. It is painful, even agonizing. But once done the relief is wonderful!

One can be gentle but I have found that firm works better for my flare ups.

Reflxology helps too.
So does chiropractic.

Trigger point Therapy
What is Trigger Point Therapy?

Trigger point therapy is a bodywork technique that involves the applying of pressure to tender muscle tissue in order to relieve pain and dysfunction in other parts of the body. Sometimes massage and trigger point therapy are performed together.

Trigger point therapy is also called myofascial trigger point therapy. It was developed by Dr. Janet Travell in the United States in the 1940s.

What are Trigger Points?

Trigger points are areas of tenderness in a muscle. There are two basic types of trigger points: active and latent.

Active trigger points cause muscular pain and will refer pain and tenderness to another area of the body when pressure is applied. Latent trigger points only exhibit pain when compressed, they do not refer pain to other areas of the body. Latent trigger points are believed to be one of the causes of stiff joints and restricted range of motion of old age.

Trigger points may be associated with myofascial pain syndromes or fibromyalgia. Trigger points are very common. They are also referred to as muscle knots.

Trigger points differ from acupressure points. Acupressure points are concentrations of energy or blockages of the body's energy pathways. Trigger points are physical phenomena that can be felt by touch.

The pain caused by trigger points may be the biggest cause of disability and loss of time in the workplace.

What Causes Trigger Points?

Trigger points have several causes. Some common causes are: birth trauma, an injury sustained in a fall or accident, poor posture, or overexertion.

What is the Purpose of Trigger Point Therapy?

The purpose of trigger point therapy is to eliminate pain and to re-educate the muscles into pain-free habits. After several treatments, the swelling and stiffness of neuromuscular pain is reduced, range of motion is increased, tension is relieved, and circulation, flexibility and coordination are improved.
http://hometown.aol.com/fibroworld/mps.htm
Myofascial Pain Syndrome (MPS) is a is a painful musculoskeletal condition, a common cause of musculoskeletal pain. MPS is characterized by the development of Myofascial trigger points (TrPs) that are locally tender when active, and refer pain through specific patterns to other areas of the body. A trigger point or sensitive, painful area in the muscle or the junction of the muscle and fascia (hence, myofascial pain) develops due to any number of causes. Trigger points are usually associated with a taut band, a ropey thickening of the muscle tissue. Typically a trigger point, when pressed upon, will cause the pain to be felt elsewhere. This is what is considered "referred pain".

Good Luck.


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~I intend to continue learning forever~"Fayte"
~I am still learning~ Michangelo
The Door to Gnosis is never permanently locked...one only needs the correct keys and passwords.
The pious man with closed eyes can often hold more ego than a proud man with open eyes.
Out of the mouth of babes commeth wisdom that can rival that of sages.
In the rough, or cut and polished..a diamond is still a precious gem.
-NEXUS-

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SunChild
Moderator

Posts: 3168
From: Australia
Registered: Jan 2004

posted June 14, 2006 11:02 PM     Click Here to See the Profile for SunChild     Edit/Delete Message
Fibromyalgia syndrome improved using a mostly raw vegetarian diet: An observational study.

This study showed that many fibromyalgia subjects can be helped by a mostly raw vegetarian diet. Thirty people participated in a dietary intervention using a mostly raw, pure vegetarian diet. The diet consisted of raw fruits, salads, carrot juice, tubers, grain products, nuts, seeds, and a dehydrated barley grass juice product.

Fibromyalgia syndrome improved using a mostly raw vegetarian diet: An observational study.
Donaldson MS, Speight N, Loomis S. Hallelujah Acres Foundation, Shelby, NC USA. michael@hacres.com


BACKGROUND: Fibromyalgia engulfs patients in a downward, reinforcing cycle of unrestorative sleep, chronic pain, fatigue, inactivity, and depression. In this study we tested whether a mostly raw vegetarian diet would significantly improve fibromyalgia symptoms.


METHODS: Thirty people participated in a dietary intervention using a mostly raw, pure vegetarian diet. The diet consisted of raw fruits, salads, carrot juice, tubers, grain products, nuts, seeds, and a dehydrated barley grass juice product. Outcomes measured were dietary intake, the fibromyalgia impact questionnaire (FIQ), SF-36 health survey, a quality of life survey (QOLS), and physical performance measurements.


RESULTS: Twenty-six subjects returned dietary surveys at 2 months; 20 subjects returned surveys at the beginning, end, and at either 2 or 4 months of intervention; 3 subjects were lost to follow-up. The mean FIQ score (n = 20) was reduced 46% from 51 to 28. Seven of the 8 SF-36 subscales, bodily pain being the exception, showed significant improvement (n = 20, all P for trend < 0.01). The QOLS, scaled from 0 to 7, rose from 3.9 initially to 4.9 at 7 months (n = 20, P for trend 0.000001). Significant improvements (n = 18, P < 0.03, paired t-test) were seen in shoulder pain at rest and after motion, abduction range of motion of shoulder, flexibility, chair test, and 6-minute walk. 19 of 30 subjects were classified as responders, with significant improvement on all measured outcomes, compared to no improvement among non-responders. At 7 months responders' SF-36 scores for all scales except bodily pain were no longer statistically different from norms for women ages 45-54.


CONCLUSION: This dietary intervention shows that many fibromyalgia subjects can be helped by a mostly raw vegetarian diet.

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fayte.m
Knowflake

Posts: 4473
From: ~out looking for Schrodinger's cat~
Registered: Mar 2005

posted June 15, 2006 08:14 AM     Click Here to See the Profile for fayte.m     Edit/Delete Message
Quote:
CONCLUSION: This dietary intervention shows that many fibromyalgia subjects can be helped by a mostly raw vegetarian diet.

True...except not all. Many persons with Fibromyalgia also have IBS or other digestive abnormalities. The raw vegetarian diet can make their symptoms much worse digestive wise.

------------------
~I intend to continue learning forever~"Fayte"
~I am still learning~ Michangelo
The Door to Gnosis is never permanently locked...one only needs the correct keys and passwords.
The pious man with closed eyes can often hold more ego than a proud man with open eyes.
Out of the mouth of babes commeth wisdom that can rival that of sages.
In the rough, or cut and polished..a diamond is still a precious gem.
-NEXUS-

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Kat
Knowflake

Posts: 738
From: Cleveland, Ohio
Registered: Jan 2003

posted June 22, 2006 06:32 PM     Click Here to See the Profile for Kat     Edit/Delete Message
I have fibromyalgia and have been pursuing it throught the Fibromyalgia and Fatigue centers that are located nationally. I'm not too sure how I feel about my progress, but what I've learned is that it's all about balancing myself. My hormones are out of wack. I have had several infections that went undetected and my diet and excercise is crazy. I'd suggest first doing whatever you can do to find out what foods are bad for you. Avoid sugar and anything that you might think that you are allergic to. Get as much sleep as you can always. The best relief strangely has been antidepressants - consider this if it is an option to you. I was on Lexapro and the doctor changed it to a drug that I couldn't tolerate so I stopped the antidepressants totally - but they were the only thing other than massive exercise that diminished the pain. Get plenty of water. Try yoga. Vegetarianism is an option too extreme for me, but I think I'm going to start with cutting out the junk food and sugar especially since I have an elevated level of systemic candida. I would not recomment the F&F center simply because it's extremely costly and I think getting yourself in balance is something only you can do. If eating better, sleeping 8 hours, drinking water, being at your ideal weight, exercising, doing meditation and relaxation, taking a multivitamin (increase tumeric), learning to handle stress etc. doesn't help (if you can achieve all this congrats your superhuman) Then I'd go to your doctor and get the following blood test. A basic run of tests that they do for a physical, a thyroid test, a candida test, lyme test (if you live in an affected area and have been bit by a tick, hormonal tests. Even being slightly low in the normal range can affect your well being. Also you might consider going to an alternative doctor after you get your results.
Keep me posted.

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