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  RainbowDay,,,info on Angioedema!!!!!!!!!!!!

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Author Topic:   RainbowDay,,,info on Angioedema!!!!!!!!!!!!
LEXX
Knowflake

Posts: 147
From: Still out looking for Schrödinger's cat......... fayte1954@hotmail.com
Registered: Jan 2008

posted February 07, 2008 07:15 PM     Click Here to See the Profile for LEXX     Edit/Delete Message
RainbowDay..
quote:
I have something called angio eudemia (or something??) which means that I once in a while get an allergic reaction to something. The cause is unknown though, a specialist have told me it may be anything from a type of food to temperature differences, dust, changes in light or something completely different. They just don't know.

PLEASE READ!!!!!
That is what the link I posted is about.
I have this type:
Hereditary Type I (HAE-I)
It is vital you be tested to determine if it is allergen related Angioedema or the more serious C1-inhibitor deficiency version; Hereditary Angioedema, or any other type. Here is a chart of the different types: http://www.haea.org/angiotable.php

The treatment is not the same and one can die with the wrong treatment! Many Emergency physicians mistake it for common anaphylaxis, which is NOT the same thing!

quote:
How is Hereditary Angioedema diagnosed?
Most cases of angioedema are not HAE because swelling attacks are typically caused by something other than C1-inhibitor deficiency, usually an allergic reaction. Laboratory analysis of blood samples or genetic testing is required to establish the HAE diagnosis. There are two specific blood tests that confirm HAE.

quote:
What is Hereditary Angioedema?
Hereditary Angioedema (HAE) is a very rare and potentially life threatening genetic condition that occurs in about 1/10,000 to 1/50,000 people. HAE symptoms include episodes of edema (swelling) in various body parts including the hands, feet, face, and airway.

http://www.haea.org/pamphlet.php

Anaphylaxis can be treated with antihistamines and corticosteroids,
but HAE cannot! Find out which you have! Your life depends on knowing!

Additionally it is possible to have both allergies and HAE! You may need both treatments!

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LEXX
Knowflake

Posts: 147
From: Still out looking for Schrödinger's cat......... fayte1954@hotmail.com
Registered: Jan 2008

posted February 08, 2008 11:54 PM     Click Here to See the Profile for LEXX     Edit/Delete Message
More at:
http://www.linda-goodman.com/ubb/Forum7/HTML/009670.html

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