posted July 29, 2008 10:45 PM
oh dear an eclipse is all I need - I think I had a super nova a few days ago ID - many parents are their child's best advocate in gaining funding. I'm sorry you have had to put on armour to do this. I see this in many parents I work with, and at times I will advocate when and where I can.
Learn the processess and talk to other parents to find the loopholes, or other little burrows you can use to access information and funding from.
Also once your child is back at Day camp, call each day to ask who has been assigned to her and how they are coping with your daughter (Do not ask how your daughter is behaving first up, as the real issue is 'the care of your daughter').
If you can, meet the Aide and other staff in person. Introduce yourself and if possible, ask for a communication booklet to be written in each day on the activities your daughter was involved in, and how she participated in them.
Also, importantly, ask the Camp what their procedure/protocol for dealing with behaviours are in regard to sending children home. Ask also for a behaviour management plan to be drawn up for your daughter so that she can have an alternative option if the environment she is in, is overwhelming her. You will need to sign this to give them permission to proceed with this.
Be up to date on paediactric advice, and register at the most relevant agency that would support your daughter eg, cerebal palsy agency, austism league. Ask a representative/social worker/OT to visit the Day camp to talk with staff and view the environment.
Now that your daughter is at school age and will be interacting more with people ie, children and staff/carers, you may find the next 2-3 years crucial in setting up supports for yourself and your daughter.
Keep all phone numbers and names of each person you will deal with over the next 2 years.
I'm sorry that I am telling you this in such a public way ID. I know having a child with special needs is challenging. It could be frustrating, but just by knowing a couple of simple steps along the way will help.
Meet with parents in a similar situation.
love koiflower xx