posted September 24, 2019 09:46 AM            

quote:

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Originally posted by sunshine9:
Prayers for you, marci! Hope you get better soon!

I saw your request in the other thread, and am bumping this post to keep it at the top.

astrogal, if you would, could you please look at marci’s situation?

🙏🏼
Sunshine

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thank you!! My neuro-ophthalmologist called me with the results of the lumbar puncture and they didn’t find anything. He said he even talked to the pathologist who looked at the labs and he said they didn’t see anything. I’m so upset, frustrated, fed up, you name it.

posted September 24, 2019 01:18 PM            

Hydromancy (Illusion) - Dowsing Rods (seeker) - Ornithomancy (Omen) - Dictionary (Communication)

I think Illusion is saying that maybe you need to be cautious about the answers you get from the doctors, but I also think the card could be saying that you're not going to the right doctors to help you. I see Illusion as don't try to put your full trust into something/someone. A little part of says you don't believe something.. but I don't know if that's true on your part. Seeker is saying that you will continue to find what you're looking for, and the card says not to give up, you're almost there. So I do think you will find the answers that you're seeking. Omen is saying to trust your intuition, but do not make a wrongful mistake that will take you off the right path. Communication is a little tricky, I do think it means that you will need to speak (sharing with what's going on), but also listen to anything that could help. It could be advice from another person or something else that's important that you must remember.

posted September 29, 2019 12:22 PM            

quote:

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Originally posted by astrogal:
How is your pituitary gland? Is it possible that you have something pressing down in that area that is causing pressure that the MRI isn't picking up? Directly above the pituitary gland is one of the major optic nerves. I'd definitely ask about that.

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posted October 03, 2019 02:56 PM            

quote:

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Originally posted by astrogal:
Is it doing any better as of late? I hope you are ok.

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posted November 06, 2019 09:22 PM            

Let me ask you this------------
Does it hurt, Marciamia?
Are you experiencing physical pain with your eye?

Can you still see out of that eye?

What does the doctor say will happen to your eye, were you not to treat the swelling?
How long would that take?

You've been through steroid treatment before?
Doc wants to be even more aggressive...
Did you go on a tight highly-wound emotional edge while you were on steroids before?

(I'm thinking about someone I observed on steroids when I was young.)

You've been on a HARSH journey with all of this already. ..Since Jan 12, 2019. Almost a year.

You decided not to reach out to Judith Hill?

I know that Mercury is retrograde right now.
Won't go direct until Nov. 20, and not out of its shadow until Dec 5. You might want to take that time to 'think' and research about what your doc suggests.

Sign up with some Healers??
Even prayer centers. (link below)

We've had two more astrologers join LL since this thread was created. Maybe they could add input, if you repost your chart.

____________________________
> Tinypic is out--
Find new image hosting place in this thread.

# Know Two are Alike (forum, intro)
Wondering How to post Images?
scroll down to 'Sept 19', 2018
to find Image Hosting
- http://www.linda-goodman.com/ubb/Forum23/HTML/000016-2.html

____________________________
# Health and Healing forum
Distant healing? {prayer, prayer groups}
- http://www.linda-goodman.com/ubb/Forum3/HTML/003531.html
____________________________

There are other Healing Centers where you can call in for prayer. Maybe other people here would list the ones they know of?

posted November 09, 2019 02:00 PM            

•Does it hurt, Marciamia? “No, it doesn’t hurt now.”

•Are you experiencing physical pain with your eye? “No, no actual physical pain, but some discomfort when I feel my left nasal cavity is feeling weird. When that happens, I feel pressure in my left nasal cavity that runs up to the left side of the bridge of my nose. This all started when there was some sort of internal injury (can’t pinpoint EXACTLY what the injury is) to that side of my nose. This might be TMI, but what I thought was a blood clot, actually ended up being maybe cartilage or bone that came out. It wasn’t at the bottom/tip of the nose either. It was up further right towards the bridge, and as soon as it happened, I experienced severe bleeding and it was painful for a while. About a day or two later, I noticed pain when moving my left eye. I didn’t think anything of it and didn’t go to the eye doctor until about 3-4 weeks later when I noticed the pain was getting worse and Motrin wasn’t helping anymore.”

•Can you still see out of that eye? “Yes, I can still see, but my vision is somewhat blurry and distorted only in that eye.”

•What does the doctor say will happen to your eye, were you not to treat the swelling? “Well, he doesn’t know what will happen if left untreated. He’s just trying to get the swelling to go down and the only recommendation is steroids. He said this is really an atypical case and I’m his only one.”

•How long would that take? “No idea.”

•You've been through steroid treatment before? “Yes. First course was in October 2018 with 3 days of IV steroids (1g each day) at the hospital then a 4 week taper starting at 40mg (ended in mid-November). I was then referred to a semi-local university so they can take over the case. That was in February 2019. The doctor took some more bloodwork to check for a few more things, they came back normal. He also wanted to check for granulomatous disease, specifically Sarcoidosis, so we did a CT scan of my chest, it came back normal. Since the swelling wasn’t getting better on its own without any intervention (swelling measurements between 155 and 152, whatever those measurements mean in neuro-ophthalmology), the second course started at the end of April for 6 weeks. When that started, we did a follow up visit about 2 weeks before my course stopped to measure the progress and it was going down (measurement of the swelling in April before we started steroids was 153, measurement at the follow up visit in May was 129). Went back for a follow up at the end of July, the swelling went back up, this time with a higher measurement of 162. We repeated another orbit MRI with and without contrast at that same visit and the findings were normal (Radiology report is as follows: “There is a normal appearance of the orbits. The globes are of normal contour and signal intensity. There is no orbital mass or abnormal enhancement along the course of thE optic nerves, chiasm and optic tracts. The intraconal and extraconal fat is within normal limits. The extraocular muscles are normal in size and signal intensity. The lacrimal glands appear normal. The orbital apices and cavernous sinuses demonstrate no abnormality. There is no abnormal enhancement”).

The next option was he wanted to do a repeat lumbar puncture (already had one April 2018), which was done in the middle of September. He got 4 big tubes of cerebral fluid, all tests came back normal. Went back for my follow up at the end of October and the swelling measurement was 151. Also at this visit, the Retinal Nerve Fiber Layer (RNFL) analysis of my left eye showed thickness which showed new Epiretinal Membrane (ERM).

Here’s what his clinical note said at the last visit: “This is a xx-year-old female with unexplained, or idiopathic steroid responsive infiltrative optic neuropathy in the left eye. Because of her previous disc elevation, and prior macular elevation she developed posterior vitreous detachment, and as a consequence of that now has epiretinal membrane. I do not think this would be operative, but would like to have a retinal specialist evaluate that issue.

We still do not have an explanation for the disc elevation. This has been going on for more than 2 years now. I suspect an inflammatory infiltrative type of lesion, such as sarcoid, but the systemic workup has been negative. We discussed ongoing observation, or repeat dosing of steroid. She elects for a repeat trial of steroid. This time would recommend higher dose of steroid and a slower taper. We will start 80 mg prednisone and taper gradually over 16 weeks. We will follow up again before completing the steroid taper to monitor her progress.”

•Did you go on a tight highly-wound emotional edge while you were on steroids before? “Yes, very much so, and feeling the same effects as before, if not worse.”

•You've been on a HARSH journey with all of this already. ..Since Jan 12, 2019. Almost a year. “January 2018.... going on 2 years now.”

posted November 09, 2019 10:50 PM            

In Sum---
Glad to hear/read you're not in any kind of 'pain', and that you can still 'see' out of that eye. .. So, it's been the swelling they reported, and what took you to them was a 'sensation' you were having in the mask of your face involving the nose (and eventually sinuses). That's when they found the nerve had swelling.

What has you most-upset, is that "worry" behind what all this could possibly be?

They've ruled out anything they thought could be some very-serious problems. That's good. That's very very good.

What you have is 'atypical'. ..
meaning, without anything they can pin-down but the nearest they can match you to.

The docs are going to KEEP pursuing this until either they (or you) say to stop.

Astrologer--
You sent Judith Hill your email only a few days ago, so, allow her a few weeks (or more) before she responds. If you don't hear from her after Mercury turns direct, then give her a telephone call? Number is listed on Page 1 of this thread.

She might possibly be able to help pinpoint what to look for. {Plus! It would be cool to have her read your chart!! }

You might go to her website and set up a reading with her. I see she has one of those self-booking calendars?? (not sure)

You might try that a few days after Mercury turns direct (after Nov. 20). .. Venus-Jupiter will conjunct by your Mars Sag, and on your Neptune Sag 28. {Have faith!}

Oh wow.. You're coming near your Jupiter Return! 3+ Capricorn.

Neptune Sag (trines your 27 Leo Asc). Your Ascendant is a body-point. (I don't have my medical astrology book in front of me right now.., and besides that, I really have no 'training' in it, so I've been winging it.)

Try to put EVERYTHING out of your head and mind. Give yourself a break from 'medical' the best you can this weekend.

BTW, The Sun was going over your Saturn Scorpio, and sometimes that transit can give a kind of cloud or 'the blues'.

Transiting Hygiea {goddess of health} is retrograde conjunct your Chiron {The Healer}.

Beautiful .. with *assuring hug*.
Have a good weekend, Marciamia.
Get some rest over these next few days.

(music) Everything's Alright (Haley Armstrong, acapella cover of JCSS song) [1:11] http://www.youtube.com/watch?v=iF-QtV7JyKA

posted November 28, 2019 06:18 PM            

stay strong, this too will pass..maybe ask about HLA-B 27 test ( if you havent done it already)...
xoxo
Sandra

posted March 07, 2020 11:13 PM            

How's your eye?
Did the steroids help that inflammation?

posted March 17, 2020 08:55 PM            

quote:

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Originally posted by mirage29:
Hi Marciamia
Thinking about you. How are you doing?

How's your eye?
Did the steroids help that inflammation?

Did you get your Medical Reading yet?

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Hey mirage!

So I didn’t end up getting the reading. When I went for my follow-up at the end of January, my doctor actually thinks he figured out what was wrong and it had nothing to do with the optic nerve at all. He said it’s not even swollen. My vitreous detached and part of it is still stuck on the nerve doing this push/pull thing which makes it look swollen, but it’s not. Steroids didn’t help not one bit except moon face, excessive weight gain and some serious mood swings

posted March 31, 2020 10:40 PM            

Yeah, I'd seen folks on prednisone treatment before. Mood swings and Moon Face were side-effects.