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Author
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Topic: bear with me please HAE is a biatch
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LEXX
Moderator Posts: 6183
From: Still out looking for Schrodinger's cat.......& LEXIGRAMMING.♥.. is my Passion!
Registered: Apr 2009
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posted April 21, 2011 09:09 AM
  
http://www.haea.org/what-is-hae/
Heads up if I do not post/reply much
today or tomorrow.
Much screaming agony
meds do not help
must ride it out
in agony
cannot think well
effects of HAE (see link)
brain swell too
all on top of my disabilities.
Take long time to post this.
Many typos fixed.
got to go
just did not
want
anyone
to feel
they are being ignored  ------------------
~The present time is theirs, but the future is mine.~Nikola Tesla
~There is no box.~H♥
~Balance is not letting anyone love you less than you love yourself.~Felipe
~I remember, therefore I am immortal~LEXX
~It is far better to regret wrong paths taken than to regret the paths not tried~Giselle
}><}}}(*>~ IP: Logged |
charmainec
Moderator Posts: 2403
From: on the other side of the rainbow
Registered: Apr 2009
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posted April 21, 2011 09:12 AM
Just replied to your other post a few minutes ago 
Don't worry and get well soon Lexx 
IP: Logged |
Ami Anne
Moderator Posts: 9698
From: Pluto/house next to NickiG
Registered: Sep 2010
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posted April 21, 2011 09:15 AM
How very considerate of you,Lexx ------------------
Why have a finely manicured lawn and be crying on the inside?
He who controls his Spirit is greater than he who controls a city
Proverbs IP: Logged |
Quinnie
Knowflake Posts: 1204
From:
Registered: Apr 2009
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posted April 21, 2011 09:19 AM
Hope you feel better soon Lexx!IP: Logged |
pixelpixie
Knowflake Posts: 173
From: ON Canada
Registered: Apr 2009
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posted April 21, 2011 09:23 AM
feel better soon!IP: Logged |
LEXX
Moderator Posts: 6183
From: Still out looking for Schrodinger's cat.......& LEXIGRAMMING.♥.. is my Passion!
Registered: Apr 2009
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posted April 21, 2011 04:27 PM
Thanks all you caring folks! 
Still waiting for swellings to go down.
But brain swelling is down and pain down to a dull roar.
Whew!
It is freakish. My abdomen can increase up to 22 inches bigger in like seconds! The pressure and pain is unbearable! All one can do is try to stop screaming and calm down. Imagine a feeling of going from not pregnant to like full term in a few seconds to under 3 minutes! Frake it is uber agonizing! Only a few tiny bruises this time!!!!!!!!!I better just in case get my Epipen refilled At least got through this one without awful steroids! IP: Logged |
Randall
Webmaster Posts: 8535
From: The Goober Galaxy
Registered: Apr 2009
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posted April 21, 2011 05:44 PM
------------------
"All deaths are suicides, do you realize that? Every single one. The only distinction is that, with some people, suicide is a subconscious choice, and with others it's a conscious choice. Otherwise, those who commit suicide and those who succumb to accident, illness or "old age," die for exactly the same reason: belief in the inevitability of death." Linda Goodman IP: Logged |
SunChild
Moderator Posts: 2320
From: Australia
Registered: Apr 2009
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posted April 21, 2011 07:05 PM
Oh my God Lexx you frighten me. Glad the brain swelling is going down. Is it all fluid? How often does it happen?
IP: Logged |
AbsintheDragonfly
Knowflake Posts: 2314
From: Gaia
Registered: Apr 2010
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posted April 21, 2011 07:47 PM
LEXX IP: Logged |
cathy
Knowflake Posts: 109
From:
Registered: Jul 2009
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posted April 21, 2011 08:52 PM
What an awful thing to have. I'm sending love to you.IP: Logged |
mochai
Knowflake Posts: 806
From: Charon
Registered: Sep 2010
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posted April 21, 2011 09:49 PM
Praying that you get better.. IP: Logged |
rajji
Moderator Posts: 702
From:
Registered: Jan 2011
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posted April 21, 2011 10:27 PM
Hope you get well soon lexx...May Gods Angels be by your side.IP: Logged |
PlutoSquared
Moderator Posts: 4353
From: Mars
Registered: Aug 2010
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posted April 21, 2011 10:31 PM
Hope you get better, soon, LEXX  IP: Logged |
sunshine9
Knowflake Posts: 169
From: Durham, NC, US
Registered: Apr 2009
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posted April 22, 2011 12:11 AM
Praying for you to feel better soon, LEXX..
Sunshine IP: Logged |
juniperb
Moderator Posts: 1929
From: Blue Star Kachina
Registered: Apr 2009
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posted April 22, 2011 11:24 AM
Be well lexx ------------------
~The Earth Laughs In Flowers~
... Emerson IP: Logged |
Ami Anne
Moderator Posts: 9698
From: Pluto/house next to NickiG
Registered: Sep 2010
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posted April 22, 2011 11:27 AM
Try to rest in Divine Love------------------
In this world,you will have tribulation but do not fear I have overcome the world.
He who controls his Spirit is greater than he who controls a city
Proverbs IP: Logged |
LEXX
Moderator Posts: 6183
From: Still out looking for Schrodinger's cat.......& LEXIGRAMMING.♥.. is my Passion!
Registered: Apr 2009
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posted May 11, 2011 06:39 PM
Thanks everyone
It is a thing that unfortunately there is no known cure for.
In addition to being disabled I just have to live with this.
Posted here today because it bummed me out worse than usual.
http://www.linda-goodman.com/ubb/Forum3/HTML/002834.html
I have so much loving and living to do!
I hate this shite getting in my way.
And please no prayers and angels.
(there are reasons I do not want such, as many of you know my reasons, "shudder")
Just wish me good luck and all in this incarnation and the ability to continue to have the strength to make the best of life I can.IP: Logged |
LEXX
Moderator Posts: 6183
From: Still out looking for Schrodinger's cat.......& LEXIGRAMMING.♥.. is my Passion!
Registered: Apr 2009
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posted May 11, 2011 06:51 PM
quote:
Originally posted by SunChild:
Oh my God Lexx you frighten me. Glad the brain swelling is going down. Is it all fluid? How often does it happen?
See article at this link: http://www.linda-goodman.com/ubb/Forum3/HTML/002834.html
Sigh;
yes,
the brain swelling whilst is not agonizing like the ab swelling or extremity swelling/numbness;
is hard because it affects the head;
horrid headaches, stroke like symptoms at times, and exhaustion.
And fraking cognitive function at times too.
Grrrsss....even my 180 IQ cannot overcome such "stupid" episodes.Arrrrggghhhh!
Its like having ones intellect suddenly suppressed. Well yeah, it is.
Yeah and resulting frustration and depression.
Go figure. IP: Logged |
LEXX
Moderator Posts: 6183
From: Still out looking for Schrodinger's cat.......& LEXIGRAMMING.♥.. is my Passion!
Registered: Apr 2009
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posted May 11, 2011 07:06 PM
I feel that once I get rid of the abnormal stress situations of things like pending divorce and other shite;
And am in a loving calm environment with the one I love
That....
things will be better and I will not have this happen as often.
sigh
One day at a time, one moment at a time;
working towards happier time! IP: Logged |
lechien
Knowflake Posts: 979
From: my 30 cubic square meter room with a rat!
Registered: May 2009
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posted May 11, 2011 07:35 PM
hang in there LEXX! i'll send you love and healing when i meditate next time (got to do it soon, haven't had the time lately!!) IP: Logged |
crabbypatty
Knowflake Posts: 468
From:
Registered: Apr 2009
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posted May 11, 2011 09:00 PM
Lexx, just wondering: have you tried purple energy discs or plates on your affected body parts when you have an attack of this swelling? IP: Logged |
LEXX
Moderator Posts: 6183
From: Still out looking for Schrodinger's cat.......& LEXIGRAMMING.♥.. is my Passion!
Registered: Apr 2009
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posted May 11, 2011 10:49 PM
quote:
Originally posted by lechien:
hang in there LEXX! i'll send you love and healing when i meditate next time (got to do it soon, haven't had the time lately!!)
Sweetheart You have already sent even without meditating! It is that easy!
Thank you!
And LOL! given me much giggles and laughs today! Thank you!  IP: Logged |
LEXX
Moderator Posts: 6183
From: Still out looking for Schrodinger's cat.......& LEXIGRAMMING.♥.. is my Passion!
Registered: Apr 2009
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posted May 11, 2011 10:52 PM
quote:
Originally posted by crabbypatty:
Lexx, just wondering: have you tried purple energy discs or plates on your affected body parts when you have an attack of this swelling?
Yes I have.
No effect that I could see. In fact may have worsened.
I would love to find a source for medicinal leeches.
I just have a crazy notion that would help.
So.....
Does any one know a source for medical grade leeches?  IP: Logged |
RMChex
Knowflake Posts: 426
From: England
Registered: Apr 2011
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posted May 12, 2011 05:58 AM
Lexx, how terrible.Do you know what your triggers are? Be well
Rachel x ------------------
Where possible, give people a piece of your heart, not a piece of your mind. IP: Logged |
bunnies
Knowflake Posts: 401
From: u.k
Registered: Apr 2009
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posted May 12, 2011 09:29 AM
http://www.leeches.biz/ Apparently in the US of A! IP: Logged |
Lindaland
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