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Barbiegirl19
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posted December 26, 2014 12:00 PM           Edit/Delete Message   Reply w/Quote
I wasn't sure where exactly to post it so I posted it here and I'm curious if there's anyone else here who has this.

I was diagnosed with cyclic vomiting syndrome(CVS) when I was 3, possibly 4. I've had "episodes" since I was just about a year old. The last "episode" I had was about 2 years ago, I've gotten dizzy a few times(a little earlier today actually) since then but luckily they didn't full out develope into a spell. I've read that some who've had it as children it goes away and comes back much worse in your 30s. I really hope not. I'm a nervous wreck as it is about this already.

I'm really curious if anyone here has it and wants to talk about it. If you don't want to then I understand. I'm just itching to know of anyone else that has it too. I've never met another person with it.

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Ami Anne
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From: Pluto/house next to NickiG
Registered: Sep 2010

posted December 26, 2014 12:28 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
I know someone has it but I will let her talk about it, if she wants. One guy who was working on my house and I started talking. His son has had it for years and years. that was the first time I heard of it.

I am soo sorry you have this, Barbie. I would love to help you with natural things if I could

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Barbiegirl19
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posted December 26, 2014 12:41 PM           Edit/Delete Message   Reply w/Quote
Thanks, Ami.

It's alright, I've had it so long. I've just accepted it for what it is. I just wish there was more, like in regards to the cause and medication. I'm not a "medicine is the answer" type of person, but I feel in certain situations that it is necessary and helps.

It's the pain and the fear that get me the most.

I wish more knew of it, not many do.

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Ami Anne
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Posts: 74285
From: Pluto/house next to NickiG
Registered: Sep 2010

posted December 26, 2014 02:46 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
OMG Barbie

I cannot imagine the devastation this would bring on someone and the living in fear of when it would happen.

This man's son is disabled. For him, I meditated on it and something came to me.

That he was exposed to some very toxic material, unknowingly.

I told one of the father's close friends and he said the son worked in garbage collection and there WAS a toxic waste issue in the area.

I am sure the causes are different for different people but there IS a root.

There is a root to every disease. The root could be a number of things and modern medicine really is not good with finding roots in my opinion.

Hence, one needs to research and more importantly, ask God to reveal the root.

God has gotten really deep with me and revealed roots.

It is really, really good you are talking about this. You could hide in shame. That was why I talk about my mother molesting me, to try to get away from the shame.

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Barbiegirl19
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posted December 26, 2014 03:17 PM           Edit/Delete Message   Reply w/Quote
In recent years they believe the root to be migraines, in which I get VERY badly. It's definitely something that's passed down through families, I don't believe it be caused by chemicals or toxins. It has to do with the brain and its receivings, your genetic makeup.

The episodes literally just happen, it would be nice if they could be prevented. I remember being a kid in the hospital every single time I got sick because of the fear of possible dehydration or damage done to the insides from puking until you're literally empty, the dry heaving. It'd be incredible if there was anything out to there to help prevent them. I mean can you imagine being fine when you go to bed and then wake up at 4 or 5 in the morning so dizzy and so hot, before you know it your puking just out of nowhere, that was me many times in a year, and then repeat the next. It's freaky. It's like spinning for hours upon hours without stopping. I'm so fearful it'll pass down to my children. Or that I'll be driving and suddenly get sick.

I have horrible gastrointestinal problems because of it.

I don't mind talking about it, I'm not ashamed. It just happens, nothing I do will ever change it.

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Ami Anne
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From: Pluto/house next to NickiG
Registered: Sep 2010

posted December 26, 2014 03:49 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
OMG

I literally am shaking from empathizing what you go through, Barbie

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Ami Anne
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From: Pluto/house next to NickiG
Registered: Sep 2010

posted December 26, 2014 03:54 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
Would you like to agree in prayer that God shows you how to heal this?

I think a person needs a Divine intervention in hard things?


God has healed my life long depression and that is a total miracle.

He can do a full miracle for you, too!

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Ami Anne
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From: Pluto/house next to NickiG
Registered: Sep 2010

posted December 26, 2014 04:14 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
When I think of all the miracles that happened for me when I put my life in God's hands, it is unbelievable.


I got so blessed by Him like my 3 top dreams came true--an organic garden, singing and playing the guitar and my website.

With the first two things, He literally brought people to my ACTUAL door to help me.

With the 3rd, I found LL and my angels here helped me.

This is an example, I looked in a little paper for a handyman.

A man called me back and I liked his voice and felt he was the person I should hire.

He turns out to be an amazing musician and I mean world class. He started giving me guitar and voice lessons and now I am ready to work on the mike and eventually will sing professionally with him.


For my garden, the same thing happened.

It is all God.

He has answered my final wish and that is to heal the depression I had from my mother.

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Ami Anne
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From: Pluto/house next to NickiG
Registered: Sep 2010

posted December 26, 2014 04:16 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
HOW God did that was amazing too.

I felt no one ever understood what I went through, maybe like the question you are asking because you feel so alone.

I felt like no one could understand, ever.

I felt totally alone and people would tell me to get over it because they did not know what to say or do.

Then, I felt like a total failure because I couldn't get over it.

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Ami Anne
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From: Pluto/house next to NickiG
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posted December 26, 2014 04:20 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
Then, get this????? God sent my son a co--worker who is EXACTLY like my mother. I never met anyone like she.

Also, my son could not get any of the jobs he wanted and was super qualified for. The only job was this store and he was led to this store in a totally supernatural way.

It goes on and on and on.

So, he was hired by this store and he has a perfect resemblance to my mother and from his understanding, I am getting over it.

Every step of this person is my mother.

I tell you all this to tell you that God can heal you and give you a ministry with it, too, if you feel led.

My Astrology is my ministry because I can help people and give love and people love me back and that is God's way to feel happy.

I hope I did not go on too long or sound bossy LOL

I just wanted to bless you, hopefully, Barbie

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Barbiegirl19
unregistered
posted December 26, 2014 04:27 PM           Edit/Delete Message   Reply w/Quote
Well, I believe we are all children of God. He is our creator, he knows our limits, what we're individually capable of. I believe that he doesn't give us anything that we aren't able to handle. He knows our strengths and it's more of keeping faith in yourself that you will pull through. Keep your Faith in Him. He know's what he's doing.

So I don't pray when I'm having an episode, it's more just telling myself that I'll pull through it. I believe every thing happens for a reason, those reasons being unknown to us. I take things as they come and deal with them to the best of my ability. When I really need hope, feel lost or confused then I go to Him.

Thank you for you blessings and well wishes. I appreciate them.

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Ami Anne
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From: Pluto/house next to NickiG
Registered: Sep 2010

posted December 29, 2014 02:19 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
Barbie

So has it been 2 years since you had an episode?

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Barbiegirl19
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posted December 29, 2014 02:32 PM           Edit/Delete Message   Reply w/Quote
Yep but I've had dizzy spells here and there without it fully blowing into one. I have horrible migraines. I hear that it gets worse for some in their 30s, I'm praying I'm not one of them.

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Ami Anne
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Posts: 74285
From: Pluto/house next to NickiG
Registered: Sep 2010

posted December 29, 2014 02:52 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
What are the triggers for your migraines, do you know, Barbie?

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Barbiegirl19
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posted December 29, 2014 03:54 PM           Edit/Delete Message   Reply w/Quote
I'm not really sure. I have pretty bad allergies, cat allergy and get migraines from them for sure.

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Randall
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From: I hold a Juris Doctorate (J.D.) and a Legum Magister (LL.M.)!
Registered: Apr 2009

posted January 06, 2015 10:29 PM     Click Here to See the Profile for Randall     Edit/Delete Message   Reply w/Quote
Cats are my only allergy.

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Barbiegirl19
unregistered
posted January 06, 2015 10:43 PM           Edit/Delete Message   Reply w/Quote
Lucky!! 😫 I have SOO many darn allergies. All nuts, dairy, all pollens, dust, cats obviously. I have to use an inhaler my lungs close up and tighten so bad. Eye drops, nose sprays lol. Not fun for a person who actually loves the spring and fall. I actually look forward to winter!

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Ami Anne
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Posts: 74285
From: Pluto/house next to NickiG
Registered: Sep 2010

posted January 06, 2015 10:58 PM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
My friend's wife has the same struggles, Barbie

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Barbiegirl19
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posted January 06, 2015 11:33 PM           Edit/Delete Message   Reply w/Quote
It sucks. I went from having just mild seasonal allergies to I can't have this, be around this or touch this lol.

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Randall
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From: I hold a Juris Doctorate (J.D.) and a Legum Magister (LL.M.)!
Registered: Apr 2009

posted January 07, 2015 08:56 AM     Click Here to See the Profile for Randall     Edit/Delete Message   Reply w/Quote

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Ami Anne
Knowflake

Posts: 74285
From: Pluto/house next to NickiG
Registered: Sep 2010

posted January 07, 2015 09:21 AM     Click Here to See the Profile for Ami Anne     Edit/Delete Message   Reply w/Quote
It sounds totally awful, Barbie. I don't think someone could imagine it if they had not lived it

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teasel
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From:
Registered: Apr 2009

posted July 14, 2023 08:42 PM     Click Here to See the Profile for teasel     Edit/Delete Message   Reply w/Quote
I know that Barbie isn't here anymore, but I have something like this. I first found out about it in 2014, followed by gastroparesis. I'd have various stomach issues for years, but not like this. I wrote to someone, in December 2009, that it felt like I had food poisoning whenever I ate something. I started throwing everything up a few months later. After a while, water wouldn't stay down either.

I have it mostly handled, but I'm still getting sick occasionally. It's been over thirteen years for me.

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teasel
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From:
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posted July 14, 2023 08:48 PM     Click Here to See the Profile for teasel     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Barbiegirl19:
In recent years they believe the root to be migraines, in which I get VERY badly. It's definitely something that's passed down through families, I don't believe it be caused by chemicals or toxins. It has to do with the brain and its receivings, your genetic makeup.

The episodes literally just happen, it would be nice if they could be prevented. I remember being a kid in the hospital every single time I got sick because of the fear of possible dehydration or damage done to the insides from puking until you're literally empty, the dry heaving. It'd be incredible if there was anything out to there to help prevent them. I mean can you imagine being fine when you go to bed and then wake up at 4 or 5 in the morning so dizzy and so hot, before you know it your puking just out of nowhere, that was me many times in a year, and then repeat the next. It's freaky. It's like spinning for hours upon hours without stopping. I'm so fearful it'll pass down to my children. Or that I'll be driving and suddenly get sick.

I have horrible gastrointestinal problems because of it.

I don't mind talking about it, I'm not ashamed. It just happens, nothing I do will ever change it.


It is linked to migraines. The endless vomiting is horrible, and can be frightening. When it gets bad, I just end up drinking water, to make the rest of it come up, and then after a while, will test water again. If that settles, then I'll shower, make some tea, and then see how it goes. May of last year, I made congee, the next day, and it helped me to start eating again, but in the past, I threw that up, too. At least it does stop now. It used to be all the time, no matter what I did.

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