posted January 17, 2008 05:41 AM         

since the commencement of this standard treatment, which is common to most
Crohns patients, her condition has progressively worsened. she is now complaining of symptoms characteristic of somene who is in an advanced state of the disease.at the time of diagnosis , the colonoscopy revealed 2 ulcers , and intestinal inflammation.
we are yet to do another colonoscopy ,but now she can barely sit because of the pain in her colon.
Crohns disease is as of yet rare in India, ulcerative colitis is more prevalent. there are only 3 doctors who are treating patients suffering from Crohns.they dont have much practical experience, or the time to concentrate on a single patient.
there is a lot of material on the net , but i want some personal opinions and suggestions.also any alternative therapies are welome. there is a dire lack of alternative therapists , except ayurveda in India. besides, no alternative therapist i have spoken to has even heard of Crohns.
my mom is in constant pain and we are considering terminating treatment, because her conditions have only worsened since the medical treatment was comenced.

posted January 17, 2008 06:48 AM         

Does she suffer from Peripheral Neuropathy also?
Is she a diabetic?
Often pregabalin and methycobalamin
are given for Peripheral Neuropathy pain
or pain from shingles.

Methylcobalamin: is a form of Vitamin B-12
pregabalin: is an Anticonvulsants

Does she have B12 deficiency from not having the Intrinsic factor?
Gastric conditions contributing to B12 deficiency include various stomach diseases that impair release of B12 from food or production of intrinsic factor.
I must get B12 injections myself. They help a little with my conditions. It seems to alleviate the internal bleeding and resulting anemia.

A good article on Chrohn's Disease is here:
http://digestive.niddk.nih.gov/ddiseases/pubs/crohns/

Bismuth & Antibiotics might possibly help.
It is a treatment for ulcers;

It worked for me personally.
(well for the ulcers but not the rest. ..)

posted January 18, 2008 01:53 AM         

I hope the doctors find a treatment that improves her condition and very soon so that she can have relief from the pain and distress she is suffering.

I have IBS ( Irritable Bowel Syndrome)which is no where near as bad as Crohn's Disease and that causes enough pain and distress certain days so my heart goes out to your mom.

I know how worrisome and hard it must be for you and your whole family to feel so helpless to do anything to relieve her pain.