posted July 01, 2020 07:49 PM            

I suppose my family and I are living a new normal, and it has been the most difficult path I have ever walked. But my “difficult” path pales in comparison to the path my son now walks.

He lives, and I thank God for that, but it is not an easy life for him. His progress has plateaued, but I keep hopeful for further progress in coming months and years. He has 90% right side paralysis, extreme speech difficulties (aphasia), and some cognitive difficulty. Add all that to his severe OCD, depression, and anxiety ... it’s hard.

He lives in a group home with a couple of other brain injury patients, but that’s a blessing. It’s a regular house in a regular neighborhood , in our town, and he gets 24/7 care plus all therapies. There is no way we could provide that kind of care here at home.

It all sucks, but that’s where we are at. I just love him so much and can’t imagine being in his shoes. We are doing the best we can.

Thank you all for the good thoughts.
❤️❤️❤️

posted July 02, 2020 07:14 PM            

You have been missed. ...

posted July 05, 2020 03:04 PM            

The things we don't know about,
are many...

Cancer has been cured, and so much more!
Nano technology repairs everything in the
body..presenting a way to immortality..
In the wrong way of course..but it shall
give people more time, or not..
All possibilities..I could go on and on..

Your son, you and your family are
in my prayers...

posted July 06, 2020 08:36 PM            

I also only recently learned of a friend of mine who had been AWOL for a considerable time online... and turns out the reason for this was that she herself had suffered a stroke (she is in her 30s) and now has left-side paralysis to the point where she is often wheelchair and bed bound (and is deep in the recovery process at the moment). It's been a terrible blow for her, and yet has said the one place where she can still BE the person she was before her stroke is in the Games she played Online (her virtual characters).

Thankfully a mouse and keyboard are still viable ways for her to interact with the world, and it got me thinking about your Son's situation too... that even if his mobility and motor skills are low, he may find much enjoyment with the likes of a VR-Headset (they are not overly expensive) and a world he could explore (and one you could explore with him (in VR)), and with this... him finding an element of personal freedom and more importantly, agency.

Please forgive my suggestion if it's insensitive to your situation in any way, though if I were in a similar position as your Son (yet I've always been a Gamer, and I also work in the Industry)... this is something I'd likely be exploring quite heavily (VR).

Recently too I was listening to a long pod-cast with Elon Musk (Technocratic Billionaire) about the research his company is doing in regards 'Neural Link', a Brain Computer Interface specializing in solving Brain Injury related problems which is making incredible progress. And when it comes to this.. I truly believe from a medical POV... Brain Injury may be the one area where huge progress can be made in the foreseeable future right across the board. Have hope, I don't believe your Son's recovery has plateaued, not with such possibilities glowing on the Horizon!

Our paths on LL have often only ever briefly crossed, though your wisdom was a great help to me on Astral Realms when I first found my way to this place, and you are missed.

Take care
LK

posted July 19, 2020 10:47 AM            

Lei, I am familiar with Musk’s neural link. I have actually emailed them about it. 👍

I have also considered the vr possibly. My youngest son has a headset and it is really cool. My oldest is concerned that it could initiate seizures, which he has been battling. I’m still trying to get him to give it a try. So your suggestions are well taken. ❤️