Author
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Topic: In the Hospital
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praecipua Knowflake Posts: 636 From: england Registered: Aug 2007
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posted April 17, 2008 11:13 AM
i believe IP: Logged |
goatgirl Knowflake Posts: 1146 From: Anywhere Registered: Jul 2002
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posted April 17, 2008 11:36 AM
Talked with Dr. Prow. It's lymphoma again. They are starting chemo as we speak. She mentioned banking the cord blood from the baby, as they've been able to treat non-hodgkins lymphoma with cord blood. The hospital social worker is going to come and talk to me about my needs.More later. Hugs, GG ------------------ The truth is ... everything counts. Everything. Everything we do and everything we say. Everything helps or hurts; everything adds to or takes away from someone else. ~ Countee Cullen We are weaving character every day, and the way to weave the best character is to be kind and to be useful. Think right, act right; it is what we think and do that makes us who we are. ~ Elbert Hubbard IP: Logged |
venusdeindia Knowflake Posts: 1431 From: mumbai,india Registered: Nov 2006
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posted April 17, 2008 12:11 PM
hope all turns out well IP: Logged |
26taurus Knowflake Posts: 14470 From: * Registered: Jun 2004
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posted April 17, 2008 04:51 PM
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lechien Knowflake Posts: 236 From: Germany Registered: Apr 2008
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posted April 17, 2008 05:04 PM
i was so shocked to read your story and didn't know what to say... but i really really hope all will be good for you and everyone who are precious to you, you are a strong mom!IP: Logged |
PixieDust Knowflake Posts: 207 From: Nahcotta, WA Registered: Apr 2005
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posted April 17, 2008 06:28 PM
GG - so sorry to hear all of this you all are going thru....Love and hugs to you and your family....I wish I could give you a real hug.. IP: Logged |
Yin Knowflake Posts: 1489 From: Registered: May 2004
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posted April 17, 2008 07:33 PM
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Azalaksh Knowflake Posts: 6870 From: New Brighton, MN, USA Registered: Nov 2004
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posted April 17, 2008 10:15 PM
Amanda, I hope you and babygirl can feel the hugs I am sending you with my mind and heart Now I am gathering up your munchkins and giving them big squeezy hugs too. I wish I could be there in person to give out lots of hugs and help with the day-to-day responsibilities that get pushed aside when something this all-consuming occurs, even if I could only just sit quietly and be a supportive presence. In my mind's eye I am seeing Kevin getting the chemo, being very weak, but becoming stronger as the cancerous cells are destroyed. He was so positive and optimistic in those update letters from a few months ago -- I am seeing him with the courage and strength to summon that positivity from the depths of his being again About taking the kids to see Dad: just my personal opinion, but I think it would be a good idea. I remember when I was hospitalized for 3 days when CJ was 6 -- after I was hauled off in the ambulance a friend of mine picked him up at school and took him to her house. He was so freaked out about Mom in the hospital (imagination) that he barely ate and barely slept. After I'd been there a day she brought him down to see me, and even though I didn't look very good with a tube up my nose, he visibly relaxed and was much less fearful the rest of the time he was at my friend's house. I think it would help your little sweeties to see that Daddy is very tired and very sick, but he's in the place that will make him well again with medicine and treatment. I'm so proud of your courage and common sense in getting all the legal paperwork in order -- just in case. Much Love & Big Hugs, K'Z IP: Logged |
goatgirl Knowflake Posts: 1146 From: Anywhere Registered: Jul 2002
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posted April 17, 2008 10:17 PM
This is the update as of this evening. The lymphoma is back. They started chemo today. Dr. Prow thinks that because it took so long to get off of the steroids, it was suppressing the growth, and that due to the fact that it was in a tricky place to begin with, that once he got off of them, it took off, and about the time we were having the blood clots, and unknown sweating, and the liver issue, it was hanging out doing it's thing. She said with chemo he still has up to an 80% chance to beat this. She was quite honest with him about if he didn't have the chemo, it would mean his death. As in we are talking about a number of weeks. She has promised him that if it doesn't work, and it's not making a difference, she won't keep doing things to him, just to do them. I've never once seen her cry. Today she was choked up. She reminded him, that he's a very special guy, and that now we have to get busy.The silver lining in all of this maybe the baby. I got one of those, get our products because you are pregnant emails, and as I didn't know much about cord blood banking I decided to read up on it, since I was awake at that obscene hour anyhow. As I was reading on the many things that cord blood has been used to treat, I came across, non-hodgkins lymphoma. When I told Dr. Prow this, her face lit up like the sun, and she smiled and said, "Yes, you need to do that. Good." So. There you have it. As much as I know at the moment. I know that I have spoken with some of you, and others I haven't had a chance to get back with yet. know that We appreciate every single good thought, and if I cant' get back with you right away, I havent' forgotten you. I will do my best to get to each of you, as I know you all care. It means a great deal to me at the moment, and I can't thank you enough, because English is very inadequate for the words. Much Love to each of you and those you love. Amanda ------------------ The truth is ... everything counts. Everything. Everything we do and everything we say. Everything helps or hurts; everything adds to or takes away from someone else. ~ Countee Cullen We are weaving character every day, and the way to weave the best character is to be kind and to be useful. Think right, act right; it is what we think and do that makes us who we are. ~ Elbert Hubbard IP: Logged |
PixieDust Knowflake Posts: 207 From: Nahcotta, WA Registered: Apr 2005
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posted April 17, 2008 11:47 PM
Keep the faith and hang in there!Love to to all!
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goatgirl Knowflake Posts: 1146 From: Anywhere Registered: Jul 2002
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posted April 18, 2008 07:47 AM
I just wanted to say a quick thanks, since I'm up and again if I think of anything that anyone might be able to help with, I will get in contact with you.Much Love to all, Amanda -- I was going through old emails from myself to Kevin and found this old signature: Be Happy. Remember you have a smile. ~ A wise little girl Life is like eating strawberries I discovered while I was picking them. There are times where you get one that is just like nectar, and those are the good times in life. Then sometimes you get one that looks good, and you eat it and well it's sour. Those are the hard times. Everyone gets a sour strawberry now and then, and that's just life. We live for the nectar filled ones, and keep eating on through the sour ones. Strawberry Philosophy ~ by Amanda Both of these still hold true, even for us right now. And if that fails there's this: http://youtube.com/watch?v=GUcXI2BIUOQ ------------------ The truth is ... everything counts. Everything. Everything we do and everything we say. Everything helps or hurts; everything adds to or takes away from someone else. ~ Countee Cullen We are weaving character every day, and the way to weave the best character is to be kind and to be useful. Think right, act right; it is what we think and do that makes us who we are. ~ Elbert Hubbard The simple act of caring is heroic. ~ Edward Albert IP: Logged |
venusdeindia Knowflake Posts: 1431 From: mumbai,india Registered: Nov 2006
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posted April 18, 2008 08:26 AM
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NosiS Moderator Posts: 1213 From: ) Registered: Apr 2004
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posted April 18, 2008 10:07 AM
gg,As difficult as all of this is for you, you should know that your posts are intensely awe-inspiring. The strength you've mustered to be able to go through what you are experiencing right now says so much about your amazing character. In these testing times, when you are probably feeling the greatest need for some sort of super hero or miracle to help you, I thought you should know that you are my heroine. You are the miracle. Your sharing here has moved me in a powerful way. Thank you. IP: Logged |
pidaua Knowflake Posts: 7419 From: Grafenwohr, Germany Registered: May 2002
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posted April 18, 2008 11:22 AM
Amanda, I am so sorry for what you and your family is going through. I haven't been around due to my schedule and was just able to log on today. My prayers are with you, your beautiful children and your awesome husband. I wish I had a miracle for you. I would give it to you in a heart beat. Lots of love, healing light and hugs... Shawnee IP: Logged |
BlueRoamer Knowflake Posts: 4559 From: Calm Blue Ocean, Calm Blue Ocean Registered: Jun 2003
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posted April 18, 2008 12:49 PM
GG, you and your family are in my prayers.IP: Logged |
Heart--Shaped Cross Knowflake Posts: 8222 From: 11/6/78 11:38am Boston, MA Registered: Aug 2004
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posted April 18, 2008 03:11 PM
With you in my thoughts and prayers. IP: Logged |
Mirandee unregistered
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posted April 19, 2008 01:33 AM
I'm so sorry, Amanda. I did not know about this until today when I came here and saw it. You are all in my prayers. From reading your posts and what you said about the cord blood, I am thinking that this sweet angel about to enter the world is going to bring with her presence a double miracle for her daddy and her mommy. Her life being the first one. How beautiful that miracle would be, returning life for life. It's just..well..so God like. It just sounds so right. I believe in miracles and I am praying very hard for you and Kevin to be blessed with that miracle. *Hugs* IP: Logged |
praecipua Knowflake Posts: 636 From: england Registered: Aug 2007
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posted April 19, 2008 04:07 AM
here's a helping hand you could not have expected... (read till the end)
quote: One night a man had a dream. He dreamed he was walking along the beach with the LORD. Across the sky flashed scenes from his life. For each scene, He noticed two sets of footprints in the sand; one belonging to him, and the other to the LORD. When the last scene of his life flashed before him, he looked back at the footprints in the sand. He noticed that many times along the path of life, there was only one set of footprints. He also noticed that it happened at the very lowest and saddest times in his life. This really bothered him, and he questioned the LORD about it. LORD, You said that once I decided to follow You, You'd walk with me all the way. But I have noticed that during the most troublesome times in my life, there is only one set of footprints. I don't understand why when I needed You most You would leave me. The LORD replied,"My son, my precious child. I love you, and I would never leave you. During your times of trial and suffering, when you see only one set of footprints, it was then that I carried you. I Love you God
ps: it's not blasphemy, i asked the permission to do it only to make you smile, nothing else
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goatgirl Knowflake Posts: 1146 From: Anywhere Registered: Jul 2002
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posted April 19, 2008 06:28 AM
May you each be blessed beyond your imaginings. Thank you all for your kind words and the pictures. You know it's funny, how some people think that the internet is a place where you can't really have friends, you know cause you don't know them in "person" well those people are wrong. You're each my friend just as much as the ones I can touch. Thank you friends. Here's the latest news. I was tired and just wanted bed last night, so it's a morning update. He looked so so so much better yesterday! I was floored really. When he asked me if he could have Indian food for lunch, I knew we are going to be ok. Those of you who know Kevin, know his love of Indian food, and know that he'd eat it 17 times a day if he could. LOL And we got an emphatic "YES!" when I asked Dr. Prow if it was alright. He said he's feeling much better, and that's a good thing. He's feeling a bit down because he said "well it's relapse." I told him that Dr. Prow's nurse had said that sometimes it takes a bit for the cancer and the technology to "catch up" and that she said if he was walking around that sick, for as long as he was, then he's one tough cookie. So he needs to keep that in mind. I know we'll get through this. As a good friend said to me in an email, the happy ending can't come in the middle of the story. And since this is the middle of the story, we're not there yet. I have the oncologists office working on the cord blood banking thing, and contacting companies. I learned through some research, and also had an email telling me this as well, that there are a handful of companies that will waive the processing fee if there is a demonstrated medical need, like a sibling or parent has a disease that is treated by the cord blood. Which is great since this costs several thousand dollars. I've been talking to the baby, and telling her that she needs to get really strong so that we can use the blood for Daddy. I was able to sleep until 4 AM today, and am making myself stay in bed at least 1 hour after I wake up, so that I get more rest. So I guess I must be feeling better too. I did take the children to see him, and well it was overwhelming for them. Heck it's overwhelming in the ICU for me and I'm 33! So I can't imagine what they must think. But Kevin perked up a great deal when he saw them, and so that was good. They did ask why there are so many things hooked up to him. I explained that some were for food and water, some were for medicine, some were to check and see how his heart, lungs, blood pressure were doing, etc. And I said "you know all those machines go ping, and pong, and beep, and boop, and make all sorts of fun noises." Then they all perked up and Ewen said "Boy I bet that keeps Dad up at nights!" And Morgen and Bowie, said "yeah I bet he does." They seemed in better spirits after that. And we've had a few emotional outbursts over things that usually wouldn't bother them, so I think they are getting it all processed. I just remember to hug them often, when I see them, and tell them I love them. Also the fact that they are with people who care about them, is a great comfort to them, and also to me. Will update again tonight/tomorrow early AM. In the meantime, take care of yourselves, and remember to tell those you love that you love them. Big Hugs and Love to you all, Amanda ------------------ The truth is ... everything counts. Everything. Everything we do and everything we say. Everything helps or hurts; everything adds to or takes away from someone else. ~ Countee Cullen We are weaving character every day, and the way to weave the best character is to be kind and to be useful. Think right, act right; it is what we think and do that makes us who we are. ~ Elbert Hubbard The simple act of caring is heroic. ~ Edward Albert IP: Logged |
Heart--Shaped Cross Knowflake Posts: 8222 From: 11/6/78 11:38am Boston, MA Registered: Aug 2004
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posted April 19, 2008 04:41 PM
That's great news, Amanda! I love indian food, too.
quote: In the meantime, take care of yourselves, and remember to tell those you love that you love them.
Okay! Thanks for the advice. Will do.
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lechien Knowflake Posts: 236 From: Germany Registered: Apr 2008
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posted April 19, 2008 05:29 PM
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BlueRoamer Knowflake Posts: 4559 From: Calm Blue Ocean, Calm Blue Ocean Registered: Jun 2003
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posted April 19, 2008 05:51 PM
Very touching to read your experiences GG.You sound like a great mom. There's a pbs special on cancer being played right now, it's very well done. I couldn't help but cry when I watched it. And I thought of you and what you're going through. IP: Logged |
wild sheep Knowflake Posts: 274 From: Oregon (USA) Registered: Dec 2007
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posted April 20, 2008 12:04 AM
Woah, scary stuff. Glad you are all holding up so well. Keep us posted.IP: Logged |
26taurus Knowflake Posts: 14470 From: * Registered: Jun 2004
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posted April 20, 2008 03:27 AM
I love you, Amanda. God Bless you and yours. IP: Logged |
goatgirl Knowflake Posts: 1146 From: Anywhere Registered: Jul 2002
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posted April 20, 2008 08:32 AM
Yesterday was a very good day. We had nice talks and he was looking better yet again! He was also more like himself, because he was joking around with the nurses, and lots more conversational. We watched a movie together and that was nice. We had a good time together, we laughed, and we cried, but it was all lovely. Every moment.I had to tell him yesterday exactly how sick he was. He didn't have any idea of how serious it had gotten to be looking. This was pretty sobering for him. I told him, 'I know you don't subscribe to certain spiritual beliefs, but you must have a lot of angels looking out for you, or either you are part cat, because this is twice you've evaded a serious outcome. So take that for what you will.' Today is our 10th anniversary. This isn't exactly where I thought we'd be on our 10th anniversary, though I'll take it. I slept until quarter of 5 this morning and stayed in bed until 6:30. I didn't feel as restless, and my mind isn't as full of thoughts, so I guess I'm getting better too. Love, Amanda ------------------ The truth is ... everything counts. Everything. Everything we do and everything we say. Everything helps or hurts; everything adds to or takes away from someone else. ~ Countee Cullen We are weaving character every day, and the way to weave the best character is to be kind and to be useful. Think right, act right; it is what we think and do that makes us who we are. ~ Elbert Hubbard The simple act of caring is heroic. ~ Edward Albert IP: Logged | |