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Author Topic:   ETERNAL ENERGY.....this is a thread for you 💖
Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 19, 2022 02:01 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Eternal Energy:
I really don't understand this best of the best doctor. You are either an absolute professional or not. I don't understand the in-betweens.
we are at a
loss too as to how he can be considered
the best out there.??????👽☠️💀
The only thing we can think of is that he is senile and only is allowed to have groups of his students do the surgeries.
He might not be allowed to do any actual surgery.
But in a teaching hospital unfortunately he is allowed to sit back and let his students do everything.👽☠️
See he would have graduated some 42 years ago from medical l school.
Perhaps he was a good student and doctor.
But now he is incompetent and clearly senile or something.👽
Teaching hospital or not
how can a doctor not know how to use a computer and the internet?
How can a super professional not be able to answer even the basic
American Cancer Society's
question concerning cancer evaluation
and basic staging guidelines?👽
He cannot even make of his mind
as to exactly what kinds or kind I have.
The mass he was worried about has vanished.
The bleeding has vanished.
There has never been any pain.
He never did a physical exam on me.👽

Sigh.....👽

Going to
Ie down.
My husband is not holding up very well.😞
All the stress has caused his seizures and intractable migraines to get much worse.
These asshats doctors are killing us with the stress on top of their gross negligencies.

So am going to lie down with my dear precious beloved husband.💕

Seriously we are both so exhausted
and do not know where to turn
and we just do not know how much longer we can handle all this.
Lawyers we cannot afford, trying to find
Any competent doctors.
Getting insurance to pay for second opinions may well be impossible too.😞👽
And neither one of us is up to all
the traveling that would be required
and tons of paperwork and several dozen at least more phone calls to many different people and places
and scheduling and
getting pre-authorization s for s cond opinions or any more medical care
as my cap may have been met and no one will authorize and pay on anything more.
We are already getting bills from
everyone because they are all
too flaming stupid to turn it
all into insurances correctly.
and more issues.

It just all looks so hopeless
If on top of my husband's
Incurable Heriditary liver disease
which requires more surgery likely
every year at least once and his
seizures and intractable migraines
and his severe arthritis etcetera.....
and his inability to walk without falling often.......
We will not know until late May if he has cancer of liver and more.😞
Without him I cannot and plain and simple will not go on trying.
Without me he pretty much feels the same.
Without my measely disability check
and food stamps and such he has no other income.
So yeah it is not looking promising for either of us to have any kind of a future together unless some fast and seriously good miracles come to us very very soon.💕

I cannot type more at the moment.
Meds have kicked in some.
Pretty bad when even Morphine
with 1,000mgs of aspirin and
Such barely touch the pain levels
or reduce them.
I do not think many folks
could bear my pain without all the lovely drugs most folks can take bout I cannot
take due to my special kind of a rare
multi-drug hypersensitivity syndrome
and a few other syndromes that
severely limit my choices of
pain relieving drugs drugs.

Doctors do not like dealing with
us poor folk.

They get angry when we have to refuse all kinds of medical care and equipment and even get angry for not going out and getting a handicap equipped van and wheelchairs etcetera
and worse yet...
actually even recently told us to go buy a handicapped accessible home and equipment and wheelchair wide doors and lifts and walk in tubs and basically go become filthy rich right now or go die you stupid low life poor
people.
Also often called us both burdens on society and burdens on the great American insurance industry.
Ok must go for now.
Just chocked and vomited on my meds and all and even water.
Ugh.😞


.


------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 12:12 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Up for more Morphine etcetera.
Not happy.
Dear sweet husband just had a
screaming moaning nightmare at
midnight exactly.👽😞
I have never heard such a
sound come from him in
almost 25 years to date.😞👽
Sounded like a being tortured
and in terrible agony.😞👽
He might have been sleeping too
deeply from exhaustion and all
his pain and seizure meds.
He also was not using his oxygen
concentrator machine.😱
I have him getting a bite to eat
as he may be having a blood sugar
crash.😱
He is refusing to check his pulse/oxygen
or do his oxygen concentrator or
check his sugar.😞
He is eating and talking without slurring
so theoretically he is okay and is
having a post ductal episode related to
the aphasia and pain caused by his
intractable type migraine seizure.
I just have to keep an eye on him for awhile.
The post dyctal state leaves him angry and disoriented and often unable to talk.
He just sits there and zones and cannot communicate.
It is scary when he does that but after almost 25 years of dealing with it all and
Up to having to do CPR on him on
March 19th. 2005,
to bring him back after he
stopped breathing and heart stopped.😱😞
He just shouted from living room that he is now okay!😎😎😎😎😎💕💕💕💕💕
Music to my ears and
heart and soul!💕🎼🎵🎶
We take our joy when and where
and however we can get it!🎼😎💕
I feel a wee bit better after my meds now too.
Gads the agony is indescribable!👽😞
I want to yell at pele when they are ride and nasty to elderly who appear to be mobility impaired and looking angry or acting angry.
I want to scream to people...you fricking uncompassionate idiots!
Those are the faces of folks in more pain than you all could possibly understand!
Pain makes folks sound gruff and angry and not wanting to talk or hear the bull crap
stock "how are you today" query
when they know that the asker could care less usually how the person in pain is.
When I do reply to that with a answer of,
"terrible"or "surviving" or "in agony" then
people reply with trite fake sorry or most likely they say crap like
Well I just asked you don't have
to get nasty about it!
Or
Well then if you feel that bad stay home!
Or
Well you are not home in bed or in a wheelchair so you must be taking.
The list of unkindness and lack of even trying to understand or listen is long.😞
Genuine concern feels and looks genuine!💕
But the fake crap is just a segue to make some person feel all god about how nice they are but it is most of the time a ruse intended or not to chastise the disabled
or in pain person,
and worse yet preach at them out of the blue about them being fat and or worse
The religious freaks shoving tractates down one's shirt or in their face telling them how evil and godless they are and deserve gods
wrath.
Not joking here.
Except for doctors and hospitals and pharmacy we rarely go out.
However even with those limits that crap has happened several times this year alone!
Even the hospital people became rude and began treating me even worse when they
made me state my religion on their
forms for admission and permissions and all.
I have had that mistreatment come from far too many in the medical field.
Can I prove that may well be one of the reasons for so much being nasty to us?
My husband selects pagan.
To most that means evil devil worshipper witch or whatever.
If I select atheist I get treated with shock and disgust and preached at.
I do not put down atheist because I am an anti-theist not a atheist.
Well actually I am a non religious
Spiritist.
Tobe clear that is
not the same or even close
to being a Spiritualist.
When I try to explain these people say that I am a necromancer!
Wow!
👽
Okay must take break and post because my internet is starting to glitch from the wind.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 01:25 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Yeppers almost bombed that post out.
Fortunately I saved a copy and saved
Could post.
Whew.
No need to reply dear sweet friend.💕
I am not a pleasant person to deal with
at this time.
I must apologize for being so unpleasant.
I know you say do not apologize but I really am truly sorry 😞 that I need to dump so awfully much of my woes and pain out here
to someone
and sad that few out in the world and
on the internet care a fig about me and my woes.
Sad that with no one aside from my beloved
Hhusband, that it happens to be dear sweet wonderful caring you dearest friend Eternal Energy.♾️💙💕

I tried to join online groups but they were worthless totally in too many ways to explain.
Too many for
Ks out there whining about their lives and all I can think is
"Wow! Want to trade places with me?'
That really ****** the whiners off.
And again even on groups that seem good enough at first,
Out of the blue pops the faith healers
and preachy religious know it all's.
Sigh....
I do sound quite b-itchy right now.
Well yes I am sad and angry
and disgusted and scared and feeling lost to
Say the least.
On that note b-itchy gloomy doomy frustrated
mind in a malatromic spinning abyss of chaos and even confusion.....
must close for nowbeing.

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 01:32 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
And again there are most likely weird tos and auto fills.
Not apologizing really but
wanted you or anyone reading to know that there may be typos and freakish auto fills that add or change words that make things sound screwed up or weird or whatever.
Going to try and eat and check on my beloved husband.
No need to reply dearest friend.💙
I know you are out there and sincerely care.
Perhaps take a break from me?
Just a suggestion.
I do not want to burn you out in the least.
💙

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 01:37 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Creepy thought.
This is the day there wanted to
torture and butcher and
possibly kill me with
negligence etcetera.👽
"SHUDDER"

Oh by the way we spoke with the neurologist and he was kind but did not offer any ideas or any solutions.
He said I need the surgery and to try and find someone else since we do not trust the j
One that did not take into account my serious issues that could cause permanent injury or death if that other doctor was to do what he wanted to do to me.
We tried to have him put that in writing but he is fearful of upsetting other doctors and we totally understand how he could become ostracized by certain people in the medical community should he put it in writing that he believes that doctor is not right and not right for me.
So here I am again trying to figure out
how to next proceed.
Sigh....My husband nuked something and it smells really yummy.
Going to go eat or try to.
Hope your day is lovely dearest friend.💕
Please do not stress yourself over me today okay?💙💙💙

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Eternal Energy
Knowflake

Posts: 1682
From:
Registered: May 2020

posted April 20, 2022 04:00 AM     Click Here to See the Profile for Eternal Energy     Edit/Delete Message   Reply w/Quote
Take a break? I'm not beaten down so easily. Yes, I can be hurt. But I will go into my secret place of seclusion and heal my wounds silently. And then return. Without no one ever knowing anything. As long as I am alive and stand on my two feet, I am not backing off.

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Eternal Energy
Knowflake

Posts: 1682
From:
Registered: May 2020

posted April 20, 2022 04:02 AM     Click Here to See the Profile for Eternal Energy     Edit/Delete Message   Reply w/Quote
So, no, I'm not taking any break from you.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 04:10 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Yes my sweet friend I am apologizing to you
Yet again.💙
However I wanted to clarify
my justifications and reasons for being
so very bitter and angry and frustrated
beyond that of my usual intensity.
Some of the meds I am on can cause when overstressed and in pain and exhausted physically and mentally
will cause those meds to negatively affect me
much more than usual too,
So I apologize and even though I cannot help
having bad reactions to meds,
I thought I should let you know that my breakdowns past day or so were brought on more and aggravated even moreso by the meds.
On that note must crash before I burn so to speak.
Hope your day is going well.😎💕

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 04:13 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Eternal Energy:
So, no, I'm not taking any break from you.

Oh my!💙😎💕
I just saw your replies
after I posted!
My internet connection
is sorely lagging👽
Bear with me
I need to go read all your
replies that I missed seeing
before I posted.
BRB ASAP
PS example of the idiot
autofill function when typing
is such as it typing in
flies instead of replies👽
or hate instead of fate.
Weird.👽

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 04:27 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Eternal Energy:
Take a break? I'm not beaten down so easily. Yes, I can be hurt. But I will go into my secret place of seclusion and heal my wounds silently. And then return. Without no one ever knowing anything. As long as I am alive and stand on my two feet, I am not backing off.

I love you so much
my dear sweet friend!💕💕💕💕💕
Now I am crying like a baby
because you are the only other
person alive on this planet
besides my dear husband
who has and does continue to
give me so very very much
of their precious
time to give me so very much
needed care and support.💕💕💕💕💕
People have lives and are busy
and most have no idea of what I
am dealing with and what
my husband is dealing with.
I do not expect anyone to
drop everything to help me cope.
Your love and caring kindness are
Beyond appreciated my dearest
friend💕💕💕💕💕

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 04:35 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Stupid autofill likes typing in
fiend instead of friend.
👽🤪
Beware of the autofill gremlins!😈👽😳

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 04:49 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Going to try and have a wee cat nap
before helping my husband in doing
the trash out for pick up
after daybreak chore.
I hate it but it is sure nice to e able
to dispose the trash and garbage.😎
Enjoy your day
you are the sweetest
sweetheart Eternal Energy😎♾️💕

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Eternal Energy
Knowflake

Posts: 1682
From:
Registered: May 2020

posted April 20, 2022 08:33 AM     Click Here to See the Profile for Eternal Energy     Edit/Delete Message   Reply w/Quote
I love you too... Please, I don't ever want you to cry again... Everything's going to be all right, you'll see...

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 10:49 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Eternal Energy:
I love you too... Please, I don't ever want you to cry again... Everything's going to be all right, you'll see...

Thank you so much sweet friend.💕
Sigh...
More tests came back...more to come.
Latest one is a Staphylococcus aureas infection coming from
they do not know yet.👽
If I had gone for the surgery today that type
of infection could have killed me.👽
Trying not to cry it now this and have not even gotten the rest of the test results back
Yet.
My jaw and ear and face and throat and neck and more hurt so much I can't describe it.
The UTI infection makes me feel like I am passing hot pepper juice .
Add on my other chronic pain and agonies and I am sad and exhausted.
At least my neurologist just called sand sent in a prescription for my intractable nausea and vomiting.
I do not like how it makes me dizzy and weak especially with my other meds that do that.....
But it does help with the extreme vomiting and pain.
Would rather have a prescription for medical marijuana but insurance does not cover that yet.
Yes he can legally prescribe it because I totally qualify as to needing it.
But insurance will not pay for it.
Makes me sad because marijuana is much safer and works better.
The synthetic form does not get one high which is fine by me because I am not interested in getting high.
It also has some potentially dangerous side effects.
Sigh....
Whatcha gonna do hey?
👽😳😞
I am going to look into a way to get medical marijuana covered here instead of having to another another state where it is legal to grow your own for medicinal use prescribed by a doctor.
If we could afford to move we would do so.
Out total assets come to about maybe S7,000
(seven thousand dollars), and our income is at least some 30% below the lowest of poverty levels so trying to live better is nigh on to impossible.
One step away from being homeless.
If I was gone my husband would be homeless.

Sigh
Just feeling so lost and hopeless right now and it is very hard to cope with psychologically and emotionally too
and all the other meds and pain and all makes it even harder.

Thank you for caring and listening to my gloom and room yammering.

Much blessings and love to you my dear sweet
Loving friend.💕🍀

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 10:51 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Again......
Stupid autofill likes typing in
fiend instead of friend
and other weird things.
👽🤪
Beware of the autofill gremlins!😈👽😳

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 07:10 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Hello my precious sweet friend!💕
🙋‍♀️
Been sleeping/cat napping most of day so far.
Trying to push myself to get up for at least
a little while.
Having to take too many meds it one must do what one must do to get going or not crash as badly if possible.
So rested up some but still of course far from my best.
Outside I see more jonquils and daffodils
and bluebells stating to push up from the ground.😎
The yard is a mess though from the Winter and planters and weeds ot cleared up from before
Winter hit looks very sloppy trashy.
Ugh.
We were both too I'll to work on yard before Winter hot and now since since yet.
Okay must go
My husband needs my attention.💕

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 20, 2022 08:42 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Wow totally creepy....👽
I lexigrammed today's date and also the doctor name and more separately.
Basically it all came out to say he would have killed me today had I gone in for the surgery.👽👽👽👽😳
Hid name is pretty nasty too when Lexigrammed.👽👽👽👽😳
Creepy creepy creepy creepy creepy 👽👽👽👽👽

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 21, 2022 01:06 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Nighty Night from me here.💤
Hope your day is starting out
wonderfully nice!😎💕

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Eternal Energy
Knowflake

Posts: 1682
From:
Registered: May 2020

posted April 21, 2022 02:49 AM     Click Here to See the Profile for Eternal Energy     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Lexxigramer:
Wow totally creepy....👽
I lexigrammed today's date and also the doctor name and more separately.
Basically it all came out to say he would have killed me today had I gone in for the surgery.👽👽👽👽😳
His name is pretty nasty too when Lexigrammed.👽👽👽👽😳
Creepy creepy creepy creepy creepy 👽👽👽👽👽


Really? How strange indeed! I do believe though that our hearts are so strong that we can rise above any negative connotation and metamorphose any bad omen into the bright Light. Deep down what we truly are is Love and nothing is stronger than this almighty power that governs Universe... Sleep peacefully, my loving friend... May Love heal all your pains...

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Lexxigramer
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Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 21, 2022 08:34 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:

Originally posted by Lexxigramer:
Wow totally creepy....👽
I lexigrammed today's date and also the doctor name and more separately.
Basically it all came out to say he would have killed me today had I gone in for the surgery.👽👽👽👽😳
His name is pretty nasty too when Lexigrammed.👽👽👽👽😳
Creepy creepy creepy creepy creepy 👽👽👽👽👽


quote:
originally posted by Eternal Energy
Really? How strange indeed! I do believe though that our hearts are so strong that we can rise above any negative connotation and metamorphose any bad omen into the bright Light. Deep down what we truly are is Love and nothing is stronger than this almighty power that governs Universe... Sleep peacefully, my loving friend... May Love heal all your pains...

We have seen way too many bad omens come to pass more times than not. I know that sounds like we are superstitious nutcases.
Or weak-minded.
Not going to get into all the examples to prove my point.
As for bad omen reversing....
well since good omens have also come true we can only assumes the opposite is true.
Omens warn us to be aware of potential events good or bad floating on the horizon of time.
Just like how the crows and ravens have warned me and even saved my life may times.
Anyhow we feel it best to not ignore omens.
I am going to try and Lexigram to find a selection of safer dates for intervention in my case.
Even if it were our imaginations we will feel more confident and safer with good portents.
Also that doctor has lied repeatedly to us and laughed about my issues and thrown out my records and admits he does not read paper files or even use the internet or know how to.
He said it is beneath him to make phone calls
and tell us what is going on and he admits basically to refusing to accommodate my other
Issues that if not taken into account would have a high risk of crippling or blinding or killing me.
His words trust me just do not cut it when he refused to talk with us or even look at the cat scans!
Like WTF?
Anyhow we are looking into finding another
doctor and all as soon as we can find one.
Have an appointment tomorrow with the doctor who sent us to the creepy doctor.
We are hoping he will listen to us and even discuss my case with others working with him.
Lastly
There are so many many things we would need to live without me having to be strapped into a bed with stomas and collection bags and various catheters just to be able to urinate and defecate and caring for such requires living conditions far beyond our means. if that creepy incompetent doctor crippled me we cannot afford the care or anything and nor will insurance pay for it all.
Usually the end for folks in our situations because poor folks simply cannot just move or buy needed things and care.
Sadly too often it becomes the bitter end.
Nothing can be done
That is what poor means.😞


Okay trying to rest more before going to go pick up my contacts.
It is a whole year supply of them.
Hopefully I live long enough to use the m all and buy more!😎

And yes we believe that
love can work magic and
make things right.💕😎
That love comes from
my husband and I
to each other
and from sweet you my friend.💕😎


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Eternal Energy
Knowflake

Posts: 1682
From:
Registered: May 2020

posted April 21, 2022 12:32 PM     Click Here to See the Profile for Eternal Energy     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Lexxigramer:
Have an appointment tomorrow with the doctor who sent us to the creepy doctor.
We are hoping he will listen to us and even discuss my case with others working with him.


Will you try and tell him how you feel about that doctor he sent you to, my loving Léxi? First of all, it is important, so as to understand you and your needs better this time and maybe send you to another doctor, more suitable for you and secondly, maybe he has something to say about that doctor that will make you feel less stressed with or angry at him...

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 21, 2022 06:01 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Eternal Energy:

Will you try and tell him how you feel about that doctor he sent you to, my loving Léxi? First of all, it is important, so as to understand you and your needs better this time and maybe send you to another doctor, more suitable for you and secondly, maybe he has something to say about that doctor that will make you feel less stressed with or angry at him...


Sadly not a good idea.👽😞
Doctors have had many of these young
especially foreign students in their hospital teaching programs
and in order to for sure to be able to graduate faster these students often have extremely biased attitude in the bad doctor's favor no matter how bad he is.
Loyalty and money buy people and their
loyalty and even their silence
They would most likely report my lack of trust and other complaints with that doctor to him and that can lead to more problems.
These young doctors become
his salespeople so to speak
and so adore the doctor who they interned under. These young doctors will do their best to refer patients to the other the doctor
when that doctor wants another lab rat so to speak.
This is not me being paranoid
this is how it actually is here.
the student doctors fall happily into
the hands of their trainer like little puppets doing his bidding.
Once they also become an intern doctor
they usually feel they owe their teacher
because often they do owe him because
of the snobbish cliques that exist in teaching hospitals.
It is sadly too often true that who one knows or kisses up to is how they get ahead and not their skills completely.
Not sure what we will say to the doctor who referred us to him because he seems to adore him and in a rather suspicious way.
We are just going to give a corrected history and symptoms file to him and tell him we need a doctor who will respect my needs to have my
Disabilities and all given complete attention.
We need a doctor who would talk to us and answer questions.
Basically we will tell him there were and are very very seriously lacking communication
problems with the bad doctor.
Must tread very carefully under these circumstances.
The big buddy system and snobbish cliques can be a powerful and even dangerous thing to make waves in.
Must use much caution to say the least.

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 21, 2022 08:00 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Sigh
Been to exhausted to go out today to pharmacy and optometrist to pick up my contacts and meds and all.
We have to see the previous on/gyn tomorrow so we will try and force oudrselves to get our out and about errands run.
I often never go anywhere but doctors hospitals for as long as over a year and months not going going out otherwise is
common for us. We pay $30 total or so
a month for delivery meds and food and
household needs and pets supplies and
and all.
Gas and doctors and medical are about it for going out.
Once in awhile we get a gift our car.
The morning of fcard from
someone for fancy food like from Applebees
or Bob Evans or Red Lobster,
and we get that if we are not vomiting bad!y.
However even then we usually pay the high price of delivery because we simply are too weak to go out to pick it up.
I too often cannot get out or make it to our car.
In fact get this....
Even had I decided to have the surgery
Wednesday morning....
I was UNABLE to walk and could only crawl
and stumble to toilet and that barely.
So I could not have kept that surgery time no matt.
I was too strained on Monday and fell a few times at the hospital in various places and getting in and out of the car and our home.
We'll see made to overdo my activity one day means that with rare exception it will take at least ,3 days or more to get back to my normal
not good either
mobility.
But better than after made to be out at hospitals etc all day.
That is the kind of thing these fools do not get.
I am physically disabled and the neurological and degenerative issues will change from day to day and even minute to minute.
I cannot just plan times for things.
My body does not always work with the schedules of others.
Medical people get angry or annoyed when I cannot get up on a table or radiology table or exam tables or even stand long enough to be weighed without falling.
They get upset when I waste their time being very slow moving.
Yes they have complained about it to my face many times.
I even had to get xrays to make sure them pulling at my arms did not break anything the other day.
It did not but have severe swelling and sprain strain of entire right shoulder arm clavicle and neck now.
Not amused.
Okay going now.
Not eating much too I'll.
But hey I need to lose another 30 pounds anyhow.
Ugh.
Do not wear yourself out for my sake.
Just say hello and hugs or whatever is enough from you dear one.💖♾️

------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 21, 2022 08:16 PM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Eternal Energy:

Will you try and tell him how you feel about that doctor he sent you to, my loving Léxi? First of all, it is important, so as to understand you and your needs better this time and maybe send you to another doctor, more suitable for you and secondly, maybe he has something to say about that doctor that will make you feel less stressed with or angry at him...


I replied to this earlier but wanted to add another comment.
You said:
quote:
maybe he has something to say about that doctor that will make you feel less stressed with or angry at him...

Well no matter what he could say the point is that bad doctor laughed several times about the cancer and my husband and I both heard him do so. He lied and delayed testing because he could not bother to get insurance authorization and more.
So how can we not be angry with him?
He has and is jeopardizing my health and our sanities etcetera.
Stressed less by anything the young ob/gyn could say about the bad doctor?
Seriously laughing is excusable?
Neglect and more is forgiveable?
Too late he has already stressed me and my husband out.
Now we have to crawl through the gamut of
trying to find others to save me.
If that bad doctor had been honest and communicated with us and not repeatedly lied and not been rude and refuse to explain and inform....
Well anyhow too late as the stress and anger have taken their toll and if this other doctor were to speak nice about the bad doctor I would have to deem him as having in essence sold his soul to the bad doctor and his snobbish clique.
Oh yeah another thing...
totally surreal....👽👽👽👽👽
The bad doctor has been
sending reports to the 👽😠
PCP who dropped me.👽😠
He knows she dropped me
months ago!👽👽👽👽😠
Why is he sending
things to her?👽👽👽👽😠
Then of course she does not
pass the messages onto me 😠
or test results because😠
she is not my PCP!.👽
So that makes two
incompetent uncommunicative
idiots screwing up my
health care etcetera.
That is so freakishly wrong
it just scream stupidity or
intentional maliciousness.👽
So no way for that clueless
but nice doctor to make me
trust that bad doctor.
That would be utterly stupid
if I did trust after
all of this.👽


Okay enough of my grousing.

Hope your night is pleasant and your dreams lovely!💖♾️

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Lexxigramer
Moderator

Posts: 7896
From: Here since March 24th.2005/..& Have been Lexagramming going on 2/3 of a century to date! LEXIGRAMMING.♥is my Passion!
Registered: Feb 2012

posted April 22, 2022 10:30 AM     Click Here to See the Profile for Lexxigramer     Edit/Delete Message   Reply w/Quote
Wnt to get referrals from the nice doctor
and he seemed to actually understand and seemed to be pretty clear about that
I should not go back to anyone
affilated with that
bad doctor and hospitals etcetera.
He seemed rather shocked that the bad doctor wanted to do dangerous invasive surgery without valid proof of it being needed.We hope we are not being taken for a ride down the wrong path again.👽
So now the question is will insurance pay for a second opinion and a new set of tests and a new PCP
and a new specialist?
And will they All w doctors and hospitals in another state that I am not a resident of?
Will I be able to be treated and all in time?
So we are still floundering in a medical limbo.
Sometimes of all of this.

Okay need to chill out.

Please no worries about replying.
Enjoy your upcoming weekend my
dear hearted friend.💖♾️
We are not going to fret any more than needed until Monday.
Everyone will I'll be closed medical wise
Who I need to go to.
So just going to wait and try to get things moving along towards curing and at least saving me and on the way to curing me....
But all that will start being dealt with
come Monday and thereabouts.

Have a lovely happy weekend
my sweet friend.💖♾️


------------------
Click here to read My Lexigramming Biography:
going on 2/3 of a century to date
♥ Lexigramming!🔠✍️
I shall return
for as long as
it is possible
to do so.

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