posted November 04, 2016 10:39 PM            

multiple-drug-intolerance & allergies
http://www.aaaai.org/conditions-and-treatments/library/allergy-library/multipl e-drug-intolerance

Stroke

http://www.mayoclinic.org/diseases-conditions/stroke/home/ovc-20117264
________________________
Spinal Stenosis
________________________
Reverse Cervical Lordosis
________________________

Transient ischemic attacks TIAs

http://www.mayoclinic.org/diseases-conditions/transient-ischemic-attack/ba sics/symptoms/con-20021291
_______________________
Episodic blindness episodes
http://en.wikipedia.org/wiki/Amaurosis_fugax
_______________________
Degenerative changes of the cervical,thoracic, and lumbar spine
(that means my entire spine)
_______________________
degenerative disk disease
_______________________
endplate spondylosis
_______________________
bone spurs
http://www.mayoclinic.org/diseases-conditions/bone-spurs/basics/definition/con-20024478
___________________________
Paresthesia http://mpkb.org/home/symptoms/neurological/paresthesia
___________________________
Degenerative arthritis of the cervical facet joints
__________________________
Thoracic and Brachial outlet syndromes, and carpal tunnel syndrome.
__________________________
Feet/ankles are messed up too.
Tendon damage, bone spurs,
various types of deformities and damage etc.
__________________________
demyelinating-polyneuropathy
http://rarediseases.org/rare-diseases/chronic-inflammatory-demyelinating-polyneuropath y/ disease pain
__________________________________
polymyalgia-rheumatica
http://rarediseases.org/rare-diseases/polymyalgia-rheumatica/
__________________________________
hereditary-angioedema
http://rarediseases.org/rare-diseases/hereditary-angioedema/
__________________________________
osteoarthritis
http://medical-dictionary.thefreedictionary.com/osteoarthritis
__________________________________
rheumatoid arthritis
http://medical-dictionary.thefreedictionary.com/rheumatoid+arthritis
_________________________________

Fibromyalgia+rheumatica
http://medical-dictionary.thefreedictionary.com/Fibromyalgia+rheumatica
________________________________
fibromatosis,
polymyositis,
neurofibromatosis,
And many more ills involving knees/hips/hands/ head/jaw etc.,
_____________________
Ankylosing Sponylitis http://www.spondylitis.org/Ankylosing-Spondylitis
_______________________

Costochrondritis http://www.mayoclinic.org/diseases-conditions/costochondritis/basics/definition/co n-20024454
__________________________

complex-regional-pain-syndrome http://www.mayoclinic.org/diseases-conditions/complex-regional-pain -syndrome/basics/definition/con-20022844
____________________________

myofascial-pain-syndrome http://www.mayoclinic.org/diseases-conditions/myofascial-pain-syndrome/ba sics/definition/con-20033195
___________________________

Cauda_equina_syndrome
https://en.wikipedia.org/wiki/Cauda_equina_syndrome
___________________________
Psoriasis of the eyes/ears etc.
https://www.psoriasis.org/files/pdfs/forum/Psoriatic-Eye-Manifestations-Forum_Fall_11_WEB.pdf
http://www.papaa.org/further-information/psoriasis-and-sensitive-areas
_________________________

Bells Palsey http://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Be lls-Palsy-Fact-Sheet
_________________________
Many more things on my list of ills.

I am not going to list all ills at this time.
_______________________________
I (and several doctors, and specialists)
have virtually run out of options.

The pain and immobility is beyond maddening to say the least.
Any ideas?

------------------
Lexigramming Newsletter

posted November 05, 2016 11:35 AM            

quote:

---

Originally posted by Randall:
Have you tried Chiropractic?

---

Oh yes indeed!
My chiropractor is the only one who can give me some relief and I dread the day he retires.
He is totally hands on, no machines, just uses his hands.
A lot of his patients are Amish.
I have been going to him for about 27 years to date.
We were friends before he became my doctor so hugs are always had between us.
My neurologist has prescribed Marinol (dronabinol) for me.
If Medical Marijuana is legalized in my state I am going to try it.

posted November 05, 2016 09:05 PM            

With carpal tunnel, ask your chiropractor to work on aligning the occipital bone at the base of your head where it meets your neck, where the occipital nerve gets pinched. That will help relieve symptoms in your wrist. It's directly related. Don't work on the wrist area directly - much too painful, eek I cringe just thinking about that pain.

posted November 06, 2016 12:04 AM            

quote:

---

Originally posted by PlutoSurvivor:
That's a lot of physical suffering for anyone to endure. So sorry.

With carpal tunnel, ask your chiropractor to work on aligning the occipital bone at the base of your head where it meets your neck, where the occipital nerve gets pinched. That will help relieve symptoms in your wrist. It's directly related. Don't work on the wrist area directly - much too painful, eek I cringe just thinking about that pain.

Do you believe in energy healing? It helps to know the cause of your symptoms. A lot of time sthe prenatal lunar eclipse will give clues, as well as the asteroids I love it how Astro.com calculates the p/n eclipses now (look under "additional objects" and scroll past the "asteroid" heading to "eclipses" and select the first two)

---

posted November 06, 2016 12:15 AM            

quote:

---

Originally posted by PlutoSurvivor:
Hey, I just realized PLUTOSURVIVOR has I LUV U in it

---

posted November 06, 2016 06:51 PM            

quote:

---

Originally posted by Lexxigramer:
[QUOTE]
Clever nevertheless.

---

posted November 06, 2016 07:34 PM            

Try doing a search on Black Seed oil.

Also do a search on copper. It seems that those who have chronic inflammation may well be copper deficient.

If you are supplementing calcium you may want to consider taking it in the evening since most of our bone loss occurs while sleeping at night.

Wishing you the Best,

posted November 06, 2016 07:50 PM            

quote:

---

Originally posted by Lexxigramer:

Nothing can be done at this point.
Just have to live with it all.

---

posted November 06, 2016 11:28 PM            

I can perhaps help from the natural medicine standpoint, if you're up to it. I hope this will help you, everything is possible, we heal ourselves, know it and feel it ((Hugs ))

You may already be doing some of the things below, I'm just not sure what therefore I'll list all that comes to my mind. In general the aim would be to bring body pH to alkaline level, reduce toxicity caused by medications, and fight off cellular inflammation, all of which will help the body to go into the healing fighting mode rather than just coping with the effects. Pain is an outcome of acidity, toxicity and cellular inflammation, so once these are addressed the pain will diminish. Getting rid of acidity is critical in the fight with arthritic pain. For immediate pain relief see some pain management methods below, Im not sure if you already tried these or not. Cannabis oil is truly a miracle cure,I hope you can get it in your state.

To reduce cellular Inflamation
- avoid consuming sugar , use raw honey instead if you have to. And no confectionery of course.
- avoid instant coffee, coffee made from ground beans is far less acidic...every barrista knows this
- avoid soda drinks, junk food like chips or anything processed as it causes acidity and increases joints inflammation - arthirits
- no aspartame or MSG (monosodium glutanamate) -these are exitotoxins and cause cellular damage, and other complications hormonal imbalance
- no food products with high frutcose glucose syrup
- no soy or soy lecitin, this will be hard as even standard chocolate has soy lecitin added... but one can try
- you can take colloidal silver - oral liquid 40ml per day, you may also use cream form to rub in, this is anti-inflammatory, a natural antibiotic http://www.amazon.com/s/ref=nb_sb_ss_c_1_8?url=search-alias%3Daps&field-keywords=colloidal+silver&sprefix=colloida%2Caps%2C247&crid=1PGUV6SN2CHHU&rh=i%3Aaps%2Ck%3Acolloidal+silver

VIT A - you need a lot of it to fight inflamation, Pacific Hawaian Spirulina (green algae) is natural and loaded with Vit A and a variety of other vitamins and minerals. It is safe, pregnant women take it for iron supplementation.

Vit K12 - this is for bone density, despite what we've been told increasing calcium is counterproductive... has to be K12 and not just Vit K...

Glucosamine supplement, and raw gelatin - this is for rebuilding cartillage... best gelatin is from chicken or turkey cartillage, it may be bad news if you're a vegetarian but essential

Apple Cider Vinegar - it helps the body maintain the right alkaline pH level, this will help with arthritis and with tendonitis... every morning and evening a warm glass of water with two spoons of ACV with a spoon of honey, you need the raw, organic, unfiltered, and unpasteurized ACV, it will have cloudy sediment at the bottom of the bottle (I had a juvenile arthritis and have managed to reverse it)

Omega 3 supplementation - 2 x 1000mg daily, one capsule with breakfast and one with lunch, unless you prefer krill oil form

Vit D - but if you're very low on Vit D supplementation may be needed or you wont be able to fight diseases

Pain management

Heat therapy at home - you may notice that when humidity is high the joints pain gets worse, and the spurs start swelling.
I have had an infrared heat therapy but I cant remember what the machine was called that the therapist have used, I found this link for you for a home therapy pad and people opinions are positive http://www.ventureheat.com/fir-heat-therapy-plug-ins/39-at-home-deluxe-heat-therapy-pad-.html

Arnica ointment or oil to rub into the joints or painful areas, Arnica is a plant that is a natural painkiller, it is potent ! so ointment will probably have about 10% concentration. Its available in health stores.

Magnesium chloride (flakes or magnesium oil) - this is a mineral salt, its natural, do not use Epsom salts as they are a synthetic version of this. Magnesium oil you just spray on the painful areas as needed and the effect is within 10 minutes. Otherwise you can bathe in magnesium flakes, you will find instructions about dosage, temperature and timing on the packaging . As your body absorbs magnesium, it will relieve pain by relaxing the muscles and body tension and cramps, and it will help with insomnia caused by Marinol medication. Also skin will be amazing.
The world's best magnesium choloride is from Zechsal basin http://www.amazon.com/s/ref=nb_sb_noss_1?url=search-alias%3Daps&field-keywords=zechsal

Good news is that when body aciditity is eliminated, inflamation will be reduced and there will be less pain.

Toxic loading of medications:
You need to establish the toxicity load and cumulative side effects, as this often brings an intense pain.
So Marinol (dronabinol) is delta-9-THC a synthetic equivalent to the one present in marihuana.
Do you take any other medications besides this ? I would check for side effects and cross interactions..

Dietary:
you need to eliminate acidic foods from your diet, aiming for alkaline diet instead, i have a handy document on how to follow an alkaline diet with food lists and dishes and what not to do, I can send it to you if needed.

Home and environment: use only natural organic soap for washing and a natural oil as body lotion (eg. coconut, avocado or sesame), you want to reduce any toxic chemicals absorbed to the skin and joints at least for while
_______________________________________________________
The must haves for long term effect :
Apple Cider Vinegar
spirulina
Omega 3
either glucosamine or gelatin

EDIT
I have included all I could think of at first glance, see how you feel about it, I highly recommend it. I have been researching natural medicine for over 10 years, I am personally using everything on this list myself, I haven't been to a doctor for over 10 years. I keep my parents on the same protocol as above, they are 70 yo. I will look into all the diseases you've posted, this is really so much to bear for one body, I feel for you and sending you lots of love.
I was writing this all out at 4-5 am so forgive the thought shortcuts ...

EDIT 2 ...just to add important note- none of the above will interact negatively or in any way with your existing medication, these are all nutritional substances not medications, and they are natural.

For Vit D3 I use american brand called SOLGAR, it is in liquid form 2500IU, bottle comes with a droppler.
For Omega 3 full spectrum - also SOLGAR, the oil is from wild alaskan salmon, pure.
I find SOLGAR one of the better brands in the market, their use mostly colloidal forms.

posted November 07, 2016 10:23 PM            

I do not post daily and when I do , it can be a while before I follow up. Yes, as you have found, black seed oil is from the cumin seed. My apologies.

As I was typing my response the word "alfalfa" popped up as well as as "astragalus". Maybe it is for Lexxigramer. Maybe it is for you. i do not know, So, I am just bringing it forward.

posted November 08, 2016 12:51 PM            

adds a layer of agony to all the other things, and adds to problems because treatments for it clash with treatments for other ills.
Also I have tried many medications, but the following I had to stop because none worked and all caused dangerous side effects.
Cannot take:
Opioids etc.
http://en.wikipedia.org/wiki/List_of_opioids

Cannot take Lyrica and Gabapentin either.
Tylenol and Ibuprofen do nothing but make me sicker.

My copper levels/ph levels and other levels are fine;
including vitamins A, D3, and calcium and zinc and Magnesium.
No electrolyte problems.
And yes I use supplements for previous deficiencies.
History of strokes and TIAs al;so complicate treatments.

posted November 08, 2016 12:55 PM            

quote:

---

Originally posted by Pathseeker:
Hello Lexxigramer,

Try doing a search on Black Seed oil.

Also do a search on copper. It seems that those who have chronic inflammation may well be copper deficient.

If you are supplementing calcium you may want to consider taking it in the evening since most of our bone loss occurs while sleeping at night.

Wishing you the Best,

Pathseeker

---

My copper levels are fine.
Yes I take calcium at bedtime.
I will look up the black seed oil A.S.A.P.

posted November 08, 2016 01:17 PM            

quote:

---

Originally posted by Novabronte:
Lexxi,

I can perhaps help from the natural medicine standpoint, if you're up to it. I hope this will help you, everything is possible, we heal ourselves, know it and feel it ((Hugs ))

You may already be doing some of the things below, I'm just not sure what therefore I'll list all that comes to my mind. In general the aim would be to bring body pH to alkaline level, reduce toxicity caused by medications, and fight off cellular inflammation, all of which will help the body to go into the healing fighting mode rather than just coping with the effects. Pain is an outcome of acidity, toxicity and cellular inflammation, so once these are addressed the pain will diminish. Getting rid of acidity is critical in the fight with arthritic pain. For immediate pain relief see some pain management methods below, Im not sure if you already tried these or not. Cannabis oil is truly a miracle cure,I hope you can get it in your state.

[b]To reduce cellular Inflamation
- avoid consuming sugar , use raw honey instead if you have to. And no confectionery of course.
- avoid instant coffee, coffee made from ground beans is far less acidic...every barrista knows this
- avoid soda drinks, junk food like chips or anything processed as it causes acidity and increases joints inflammation - arthirits
- no aspartame or MSG (monosodium glutanamate) -these are exitotoxins and cause cellular damage, and other complications hormonal imbalance
- no food products with high frutcose glucose syrup
- no soy or soy lecitin, this will be hard as even standard chocolate has soy lecitin added... but one can try
- you can take colloidal silver - oral liquid 40ml per day, you may also use cream form to rub in, this is anti-inflammatory, a natural antibiotic [URL=http://www.amazon.com/s/ref=nb_sb_ss_c_1_8?url=search-alias%3Daps&field-keywords=colloidal+silver&sprefix=colloida%2Caps%2C247&crid=1PGUV6SN2CHHU&rh=i%3Aaps%2Ck%3Acolloidal+si lver]http://www.amazon.com/s/ref=nb_sb_ss_c_1_8?url=search-alias%3Daps&field-keywords=colloidal+silver&sprefix=colloida%2Caps%2C247&crid=1PGUV6SN2CHHU&rh=i%3Aaps%2Ck%3Acolloidal+si lver[/URL]

VIT A - you need a lot of it to fight inflamation, Pacific Hawaian Spirulina (green algae) is natural and loaded with Vit A and a variety of other vitamins and minerals. It is safe, pregnant women take it for iron supplementation.

Vit K12 - this is for bone density, despite what we've been told increasing calcium is counterproductive... has to be K12 and not just Vit K...

Glucosamine supplement, and raw gelatin - this is for rebuilding cartillage... best gelatin is from chicken or turkey cartillage, it may be bad news if you're a vegetarian but essential

Apple Cider Vinegar - it helps the body maintain the right alkaline pH level, this will help with arthritis and with tendonitis... every morning and evening a warm glass of water with two spoons of ACV with a spoon of honey, you need the raw, organic, unfiltered, and unpasteurized ACV, it will have cloudy sediment at the bottom of the bottle (I had a juvenile arthritis and have managed to reverse it)

Omega 3 supplementation - 2 x 1000mg daily, one capsule with breakfast and one with lunch, unless you prefer krill oil form

Vit D - but if you're very low on Vit D supplementation may be needed or you wont be able to fight diseases

Pain management

Heat therapy at home - you may notice that when humidity is high the joints pain gets worse, and the spurs start swelling.
I have had an infrared heat therapy but I cant remember what the machine was called that the therapist have used, I found this link for you for a home therapy pad and people opinions are positive http://www.ventureheat.com/fir-heat-therapy-plug-ins/39-at-home-deluxe-heat-thera py-pad-.html

Arnica ointment or oil to rub into the joints or painful areas, Arnica is a plant that is a natural painkiller, it is potent ! so ointment will probably have about 10% concentration. Its available in health stores.

Magnesium chloride (flakes or magnesium oil) - this is a mineral salt, its natural, do not use Epsom salts as they are a synthetic version of this. Magnesium oil you just spray on the painful areas as needed and the effect is within 10 minutes. Otherwise you can bathe in magnesium flakes, you will find instructions about dosage, temperature and timing on the packaging . As your body absorbs magnesium, it will relieve pain by relaxing the muscles and body tension and cramps, and it will help with insomnia caused by Marinol medication. Also skin will be amazing.
The world's best magnesium choloride is from Zechsal basin [URL=http://www.amazon.com/s/ref=nb_sb_noss_1?url=search-alias%3Daps&field-keywords=zechsal]http://www.amazon.com/s/ref=nb_sb_noss_1?url=search-alias%3Daps&field-keywords=zechsal[/ URL]

Good news is that when body aciditity is eliminated, inflamation will be reduced and there will be less pain.

Toxic loading of medications:
You need to establish the toxicity load and cumulative side effects, as this often brings an intense pain.
So Marinol (dronabinol) is delta-9-THC a synthetic equivalent to the one present in marihuana.
Do you take any other medications besides this ? I would check for side effects and cross interactions..

Dietary:
you need to eliminate acidic foods from your diet, aiming for alkaline diet instead, i have a handy document on how to follow an alkaline diet with food lists and dishes and what not to do, I can send it to you if needed.

Home and environment: use only natural organic soap for washing and a natural oil as body lotion (eg. coconut, avocado or sesame), you want to reduce any toxic chemicals absorbed to the skin and joints at least for while
_______________________________________________________
The must haves for long term effect :
Apple Cider Vinegar
spirulina
Omega 3
either glucosamine or gelatin

EDIT
I have included all I could think of at first glance, see how you feel about it, I highly recommend it. I have been researching natural medicine for over 10 years, I am personally using everything on this list myself, I haven't been to a doctor for over 10 years. I keep my parents on the same protocol as above, they are 70 yo. I will look into all the diseases you've posted, this is really so much to bear for one body, I feel for you and sending you lots of love.
I was writing this all out at 4-5 am so forgive the thought shortcuts ...

EDIT 2 ...just to add important note- none of the above will interact negatively or in any way with your existing medication, these are all nutritional substances not medications, and they are natural.

For Vit D3 I use american brand called SOLGAR, it is in liquid form 2500IU, bottle comes with a droppler.
For Omega 3 full spectrum - also SOLGAR, the oil is from wild alaskan salmon, pure.
I find SOLGAR one of the better brands in the market, their use mostly colloidal forms.

[/B]

---

It sucks to say the least.
One day at a time.
I shall return and comment more and add my own observations later today if I am able.
Thank you again very much Novabronte
PS.
Does hair turning nearly white in a short period of only months mean anything that you know of?
I had 4 feet of Auburn hair until the past 6 months or so.
It is much shorter now (hair loss)and the new growth is mostly white now.
Please excuse any typos, hopefully fixed them all.

posted November 08, 2016 01:18 PM            

quote:

---

Originally posted by mirage29:
{{That's soo heavy to be in continuous pain like that, Lexx. Takes great courage. {{hug}} }}

Great info, all!

---

posted November 08, 2016 01:28 PM            

quote:

---

Originally posted by Lexxigramer:

the nerve damage caused by demyelination

---

Have you been tested for heavy metals toxicity such as mercury?
Have you been getting flu vaccinations?
Or eating fish, shrimp etc on a regular basis ? fish accumulate mercury...
Do you have metal fillings in your teeth ?

Have the doctors checked and eliminated mercury poisoning as the cause for demyelination?
...heavy metals always bioaccumulate in the brain

White hair... I have gone from no greys, to quite a lot of it in a matter of three months due to emotional trauma, worrying, not eating much... but on chemical level, tyrosinase (a copper dependant enzyme) is responsible for pigmentation of hair and skin, so if you low on copper your hair will eventually loose pigment... human body uses a lot of copper to fight inflammation, besides needing it for other things...
Copper deficiency symptoms include anemia, bone disorders, defective spinal cord, hair greying and hair becoming fine and straight, losing its curl, infertility; weak connective tissue as evidenced by heart problems such as enlarged heart, weak aorta with holes and ruptures, aneurisms, varicose veins, wrinkling skin, and hernias. Copper deficiency greatly increases the lipid peroxidation of lipoproteins and cardiovascular tissue. It causes high cholesterol levels, and heart attack victims have low copper levels in the heart.

As for your Vit D3 levels (25-OHD) :
"In order to live well, a person needs to maintain between 40 and 60 nanograms per milliliter (ng/ml) of vitamin D, according to several prominent sources. This is considered the "optimal" range at which a majority of chronic diseases can be prevented or avoided. But many people fall far short of this, due in large part to misguided government recommendations that might be effective at stopping a pandemic of rickets but won't protect against diseases like multiple sclerosis and cancer."